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SCI Abstract
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Quality of life and access to treatment for patients with multiple sclerosis during economic crisis: the Lebanese experience
Multiple sclerosis (MS) is a demyelinating disease of the central nervous system that can lead to lifelong disability, sig...
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Exploratory analysis of electronic patient-reported outcomes collection: comparing online and in-clinic modalities in cancer care
Patient reported outcome measures (PROMs) have been shown to improve cancer survival but are generally underutilized in ca...
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Impact of early-life food deprivation on health-related quality of life among older people in China: evidence from CHARLS
This study aims to explore the impact of early-life food deprivation on health-related quality of life (HRQoL) among older...
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Health-related quality of life and economic impacts in adults with sickle cell disease with recurrent vaso-occlusive crises: findings from a prospective longitudinal real-world survey
Characterize health-related quality of life (HRQoL) and economic impacts associated with sickle cell disease (SCD) with re...
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An international compendium of health state utilities in people with HIV: a systematic review
Measuring health-related quality of life across different health states for people with HIV (PWH) using direct or indirect...
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Use of the adult social care outcomes toolkit (ASCOT) in research studies: an international scoping review
Since the launch of Adult Social Care Outcomes Toolkit (ASCOT) in 2012, there has been increasing interest in use of ASCOT...
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Longitudinal impact of stigma resistance on mental health among individuals with mental disorders
This study evaluated a conceptual model regarding the longitudinal impact of stigma resistance on the mental health of ind...
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Evaluating an electronic patient-reported outcome monitoring system in patients with prostate cancer in routine clinical care: a prospective observational study
This study evaluated the feasibility, acceptability, and clinical utility of an electronic patient-reported outcome (ePRO)...
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A literature review exploring whether meaningful change threshold estimates for patient-reported outcome (PRO) measures vary depending on baseline severity
Meaningful change thresholds for patient-reported outcome (PRO) measures may differ according to patients’ baseline ...
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Understanding data visualization techniques in qualitative studies used to develop and validate patient-reported outcome measures: a targeted literature review
Qualitative data that reflects patients’ experiences are the foundation of any patient-reported outcome measure (PRO...
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Exploring the origin and conceptual framework of the EQ VAS
The objective of this paper is to report on the origin of the EQ VAS and current understanding of the EQ VAS conceptual fr...
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The comprehensibility and feasibility of the modified brief pain inventory and fear of pain questionnaire adapted for children and young people with cerebral palsy
To test the comprehensibility and feasibility of the modified brief pain inventory (mBPI) and Fear of Pain Questionnaire f...
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The social determinants of health-related quality of life among people with chronic disease: a systematic literature review
This systematic review investigates the relationship between Social Determinants of Health (SDoH) and Health-Related Quali...
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Multi-dimensional frailty and Oral Health-Related Quality-of-Life in older adults: a cross-sectional study
Frailty is an age-associated decline of physiological functions, with psychological, social and environmental dimensions. ...
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Health-related quality of life among patients with rheumatoid arthritis in Zanzibar: a prospective cohort study
Rheumatoid arthritis (RA) is a chronic inflammatory illness that mainly affects the joints. Untreated, it causes deformity...
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Bidirectional association between frailty and quality of life within English longitudinal study of aging
The relationship between quality of life (QoL) and frailty has previously been investigated cross-sectionally and longitud...
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Impact of arterial stiffness on health-related quality of life in older Thai adults with treated HIV infection: a multicenter cohort study
Despite advancements in antiretroviral therapy (ART) that extend life expectancy, older adults with HIV (OAHIV) face eleva...
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Pharmacist-facilitated Patient Reported Outcome Measure (PROM) monitoring: developing an EHR SmartForm© to monitor side effects of oral oncolytics during routine telehealth encounters
Patient reported outcome measures (PROMs) are increasingly used in oncology care, but pharmacists providing direct patient...
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Association of adverse events and quality of life in patients with unresectable hepatocellular carcinoma
Hepatocellular carcinoma (HCC) is the third-leading cause of cancer-related deaths globally. Patients are often diagnosed ...
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Impact of rehabilitation with dental implants on the quality of life of patients undergoing maxillofacial reconstruction: a systematic review
Maxillofacial reconstruction with dental implants in microvascular tissue flaps aims to improve mastication. However, the ...
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One-year trajectories of physical and mental health-related quality of life, fatigue and dyspnoea in COVID-19 survivors
A substantial number of people experience a persisting impact on health-related quality of life (HRQoL) after COVID-19. Th...
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Health-related quality of life in 205 children with arthrogryposis multiplex congenita
Arthrogryposis multiplex congenita (AMC) describes a heterogeneous group of rare congenital conditions. Health-related qua...
Quality Of Life Research
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Development of the celiac disease symptom diary version 2.1© (CDSD 2.1©) patient-reported outcome measure
For patients with celiac disease (CeD), the only current management option is adherence to a strict gluten-free diet (GFD)...
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The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States
This cross-sectional survey study quantified the humanistic burden of immunoglobulin A nephropathy (IgAN), in terms of phy...
Quality Of Life Research
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Testing the psychometric characteristics of EQ-5D-5L and respiratory bolt-ons using a sample of the Australian population
The EQ-5D has been used to assess health related quality of life (HRQoL) in respiratory conditions. However, the core desc...
Quality Of Life Research
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Quality of life of inflammatory bowel diseases patients in france with EQ-5D-5 L: the QALY-MICI study
This study aimed to document utility values and the Visual Analog Scale (VAS) with the 5-level version of the EQ-5D questi...
Quality Of Life Research
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Trajectory of health-related quality of life during and after hospitalisation due to worsening of heart failure
This study aimed to examine the trajectory in health-related quality of life (HRQoL) during and after hospitalisation for ...
Quality Of Life Research
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Health-related quality of life dynamics: modeling insights from immunotherapy
Understanding health-related quality of life (HRQoL) dynamics is essential for assessing and improving treatment experienc...
Quality Of Life Research
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Japanese value set for the EORTC QLU-C10D: A multi-attribute utility instrument based on the EORTC QLQ-C30 cancer-specific quality-of-life questionnaire
This study aimed to develop a Japanese value set for the EORTC QLU-C10D, a multi-attribute utility measure derived from th...
Quality Of Life Research
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Influence of frailty status on the health-related quality of life in older patients with chronic low back pain: a retrospective observational study
Understanding the influence of frailty on health-related quality of life (HRQoL) in older individuals experiencing chronic...
Quality Of Life Research
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