Use of the adult social care outcomes toolkit (ASCOT) in research studies: an international scoping review

Sen, A., & Nussbaum, M. (1993). The quality of life. Clarendon Press.

Google Scholar 

van Loon, M. S., van Leeuwen, K. M., Ostelo, R. W. J. G., Bosmans, J. E., & Widdershoven, G. A. M. (2018). Quality of life in a broader perspective: Does ASCOT reflect the capability approach? Quality of Life Research, 27, 1181–1189. https://doi.org/10.1007/s11136-017-1756-5

Article  PubMed  Google Scholar 

Netten, A., Burge, P., Malley, J., Potoglou, D., Towers, A.-M.M., Brazier, J., et al. (2012). Outcomes of social care for adults: Developing a preference-weighted measure. Health Technol Assess (Rockv), 16, 1–165.

CAS  Google Scholar 

Rand, S., Malley, J. N., Netten, A. P., & Forder, J. E. (2015). Factor structure and construct validity of the adult social care outcomes toolkit for carers (ASCOT-Carer). Quality of Life Research, 24, 2601–2614.

Article  PubMed  PubMed Central  Google Scholar 

Siette, J., Knaggs, G, T., Zurynski, Y., Ratcliffe, J., Dodds, L., Westbrook, J. (2021). Systematic review of 29 self-report instruments for assessing quality of life in older adults receiving aged care services. BMJ Open. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85120374735&doi=10.1136%2fbmjopen-2021-050892&partnerID=40&md5=8d25e44476d193c9603c083fe6c1c910

Bulamu, N. B., Kaambwa, B., & Ratcliffe, J. (2015). A systematic review of instruments for measuring outcomes in economic evaluation within aged care. Health and Quality of Life Outcomes, 13, 179.

Article  PubMed  PubMed Central  Google Scholar 

Dow, J., Robinson, J., Robalino, S., Finch, T., McColl, E., & Robinson, L. (2018). How best to assess quality of life in informal carers of people with dementia; A systematic review of existing outcome measures. PLoS ONE, 13, e0193398. https://doi.org/10.1371/journal.pone.0193398

Article  CAS  PubMed  PubMed Central  Google Scholar 

Mueller, C. E., Gaus, H., & Rech, J. (2014). The counterfactual self-estimation of program participants. American Journal of Evaluation, 35, 8–25. https://doi.org/10.1177/1098214013503182

Article  Google Scholar 

Malley, J., Rand, S., Netten, A., Towers, A.-M., & Forder, J. (2019). Exploring the feasibility and validity of a pragmatic approach to estimating the impact of long-term care: The “expected” ASCOT method. Journal of Long-Term Care. https://doi.org/10.31389/jltc.11/

Article  Google Scholar 

Towers, A.-M., Smith, N., Allan, S., Vadean, F., Collins, G., Rand, S., et al. (2021). Care home residents’ quality of life and its association with CQC ratings and workforce issues: The MiCareHQ mixed-methods study. Health Services and Delivery Research, 9, 1–188.

Article  Google Scholar 

Rand, S., Towers, A.-M., Razik, K., Turnpenny, A., Bradshaw, J., Caiels, J., et al. (2019). Feasibility, factor structure and construct validity of the easy-read adult social care outcomes toolkit (ASCOT-ER). Journal of Intellectual Developmental Disability, 45, 119–132.

Article  Google Scholar 

Turnpenny, A., Caiels, J., Whelton, B., Richardson, L., Beadle-Brown, J., Crowther, T., et al. (2018). Developing an easy read version of the adult social care outcomes toolkit (ASCOT). Journal of Applied Research in Intellectual Disabilities, 31, e36-48. https://doi.org/10.1111/jar.12294

Article  PubMed  Google Scholar 

Caiels, J., Rand, S., Mikelyte, R., Webster, L., Field, E., Towers, AM. (2024). Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social ca`re. Quality of Life Research. 1–12.

Silarova, B., Rand, S., Towers, A. M., & Jones, K. (2023). Feasibility, validity and reliability of the ASCOT-proxy and ASCOT-carer among unpaid carers of people living with dementia in England. Health and Quality of Life Outcomes, 21, 54. https://doi.org/10.1186/s12955-023-02122-0

Article  PubMed  PubMed Central  Google Scholar 

Rand, SE., Caiels, J., (2015). Using proxies to assess quality of life: A review of the issues and challenges [Internet]. Canterbury: Personal Social Services Research Unit, University of Kent. https://www.pssru.ac.uk/pub/4980.pdf

Caiels, J., Rand, S., Crowther, T., Collins, G., Forder, J. (2019). Exploring the views of being a proxy from the perspective of unpaid carers and paid carers: Developing a proxy version of the Adult Social Care Outcomes Toolkit (ASCOT). BMC Health Services Research. 19.

Rand, S., Caiels, J., Collins, G., & Forder, J. (2017). Developing a proxy version of the adult social care outcome toolkit (ASCOT). Health and Quality of Life Outcomes, 15, 108.

Article  PubMed  PubMed Central  Google Scholar 

Rand, S., Towers, A. M., Allan, S., Webster, L., Palmer, S., Carroll, R., Adam, Gordon., Gizdem, Akdur., Claire, Goodman. (2024). Exploratory factor analysis and Rasch analysis to assess the structural validity of the adult social care outcomes toolkit proxy version (ASCOT-Proxy) completed by care home staff. Quality of Life Research 33:1555–67. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85188186835&doi=10.1007%2fs11136-024-03631-1&partnerID=40&md5=032bb89cd886777472d251072867d70c

Batchelder, L., Malley, J., Burge, P., Lu, H., Saloniki, E.-C., Linnosmaa, I., et al. (2019). Carer social care-related quality of life outcomes: Estimating english preference weights for the adult social care outcomes toolkit for carers (ASCOT-carer). Value in Health, 22, P1427-1440.

Article  Google Scholar 

Towers, A, M., Holder, J., Smith, N., Crowther, T., Netten, A., Welch, E., Collins, G. (2015). Adapting the adult social care outcomes toolkit (ASCOT) for use in care home quality monitoring: Conceptual development and testing. BMC Health Services Research 15. https://www.scopus.com/inward/record.uri?eid=2-s2.0-84938582590&doi=10.1186%2fs12913-015-0942-9&partnerID=40&md5=23b12650bee2679d2686d37b6dd4ce37

Towers, A, M., Rand, S., Collins, G., Smith N, Palmer S, Cassell J. (2023). Measuring quality of life in care homes when self-report is challenging: the construct validity, structural characteristics and internal consistency of the mixed-methods adult social care outcomes toolkit. Age Ageing, 52. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85169516348&doi=10.1093%2fageing%2fafad168&partnerID=40&md5=beb5aeb5f6741ed2b08ef59ff8e3faec

Rand, S. E., Malley, J. N., Vadean, F., & Forder, J. (2019). Measuring the outcomes of long-term care for unpaid carers: Comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3L. Health and Quality of Life Outcomes, 17, 1–12.

Article  Google Scholar 

Rand, S., & Malley, J. (2014). Carers’ quality of life and experiences of adult social care support in England. Health Social Care Community., 22, 375–385. https://doi.org/10.1111/hsc.12089

Article  Google Scholar 

Rand, S., Towers, A.-M., Malley, J., & Silarova, B. (2023). Exploring the structural characteristics of the adult social care outcomes toolkit (ASCOT) and ASCOT-carer. NIHR Open Research, 2, 21.

Article  PubMed  PubMed Central  Google Scholar 

Rand, S. (2020). What does an outcomes-based perspective bring to an understanding of care and caring? International Journal Care Caring., 4, 605–610.

Article  Google Scholar 

Rand, S., Vadean, F., & Forder, J. (2020). The impact of social care services on carers’ quality of life. International Journal Care Caring., 4, 235–259.

Article  Google Scholar 

Silarova, B., Brookes, N., Palmer, S., Towers, A. M., & Hussein, S. (2022). Understanding and measuring the work-related quality of life among those working in adult social care: A scoping review. Health Social Care Community., 30, 1637–1664.

Article  Google Scholar 

Hussein, S., Towers, A. M., Palmer, S., Brookes, N., Silarova, B., & Mäkelä, P. (2022). Developing a scale of care work-related quality of life (CWRQoL) for long-term care workers in England. International Journal Environmental Research Public Health. https://doi.org/10.3390/ijerph19020945

Article  PubMed  Google Scholar 

Engel, L., Bucholc, J., Mihalopoulos, C., Mulhern, B., Ratcliffe, J., Yates, M., Hanna, L. (2020). A qualitative exploration of the content and face validity of preference-based measures within the context of dementia. Health Qual Life Outcomes. 18. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85086425346&doi=10.1186%2fs12955-020-01425-w&partnerID=40&md5=d2ac79409788c908967f94bbd16a8676

Rand, S., Malley, J., Towers, A. M., Netten, A., & Forder, J. (2017). Validity and test-retest reliability of the self-completion adult social care outcomes toolkit (ASCOT-SCT4) with adults with long-term physical, sensory and mental health conditions in England. Health and Quality of Life Outcomes. https://doi.org/10.1186/s12955-017-0739-0

Article  PubMed  PubMed Central  Google Scholar 

Malley, J. N., Towers, A.-M., Netten, A. P., Brazier, J. E., Forder, J. E., & Flynn, T. (2012). An assessment of the construct validity of the ASCOT measure of social care-related quality of life with older people. Health and Quality of Life Outcomes. https://doi.org/10.1186/1477-7525-10-21

Article  PubMed  PubMed Central  Google Scholar 

van Leeuwen, K. M., Bosmans, J. E., Jansen, A. P. D., Hoogendijk, E. O., van Tulder, M. W., van der Horst, H. E., et al. (2015). Comparing measurement properties of the EQ-5D-3L, ICECAP-O, and ASCOT in frail older adults. Value in Health., 18, 35–43.

Article  PubMed  Google Scholar 

Crocker, M., Hutchinson, C., Mpundu, Kaambwa, C., Walker, R., Chen, G., Ratcliffe, J. (2021). Assessing the relative importance of key quality of life dimensions for people with and without a disability: An empirical ranking comparison study. Health Qual Life Outcomes 19. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85121299735&doi=10.1186%2fs12955-021-01901-x&partnerID=40&md5=be0cadd2900eb51afbce32ba18ad0576

Kaambwa, B., Gill, L., McCaffrey, N., Lancsar, E., Cameron, I. D., Crotty, M., Gray, L., & Ratcliffe, J. (2015). An empirical comparison of the OPQoL-Brief, EQ-5D-3L and ASCOT in a community dwelling population of older people. Health QualITY Life Outcomes. https://doi.org/10.1186/s12955-015-0357-7

Article  Google Scholar 

Engel, L., Kosowicz, L., Bogatyreva, E., Batchelor, F., Devlin, N., Dow, B., Peasgood, T., Viney, R. (2023). Face validity of four preference-weighted quality-of-life measures in residential aged care: a think-aloud Study. Patient. 16:655–66. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85173599010&doi=10.1007%2fs40271-023-00647-6&partnerID=40&md5=b4bcee72a6419b059afebc5fee4301f5

Milte, CM., Walker, R., Luszcz, MA., Lancsar, E., Kaambwa, B., Ratcliffe, J. (2014). How important is health status in defining quality of life for older people? An exploratory study of the views of older South Australians. Appl Health Econ Health Policy 12:73–84. https://www.scopus.com/inward/record.uri?eid=2-s2.0-84893585659&doi=10.1007%2fs40258-013-0068-3&partnerID=40&md5=dcaf49a46792909086ce0dcd9da76551

Forder, J. E., & Caiels, J. (2011). Measuring the outcomes of long-term care. Social Science & Medicine, 73, 1766–1774.

Article  Google Scholar 

Hackert, M. Q. N., van Exel, J., & Brouwer, W. B. F. (2017). Valid outcome measures in care for older people: Comparing the ASCOT and the ICECAP-O. Value in Health, 20, 936–944.

Article  PubMed  Google Scholar 

McLoughlin, C., Goranitis, I., Al, Janabi, H. (2023). The feasibility and validity of preference-based quality of life measures with informal carers: a think-aloud study. Value in Health. https://linkinghub.elsevier.com/retrieve/pii/S109830152303067X

McLoughlin, C., Goranitis, I., Al, Janabi, H. (2020). Validity and responsiveness of preference-based quality-of-life measures in informal carers: A comparison of 5 measures across 4 conditions. Value in Health 23:782–90. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85084416956&doi=10.1016%2fj.jval.2020.01.015&partnerID=40&md5=4a40d2b0dbc57ae3ace432f9e7effd1b

McCaffrey, N., Bucholc, J., Rand, S., Hoefman, R., Ugalde, A., Muldowney, A., Cathrine, M., Lidia, E. (2020). Head-to-head comparison of the psychometric properties of 3 carer-related preference-based instruments. Value in Health 23:1477–88. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85091199243&doi=10.1016%2fj.jval.2020.07.005&partnerID=40&md5=ec768606aa976e349cf9bfec672e83b0

Bucholc, J., McCaffrey, N., Ugalde, A., Muldowney, A., Rand, S., Hoefman, R, Mihalopoulos, C., Engel, L., (2023). How well do the adult social care outcomes toolkit for carers, carer experience scale and care-related quality of life capture aspects of quality of life important to informal carers in Australia? Quality of Life Research 32:3109–21. https://www.scopus.com/inward/record.uri?eid=2-s2.0-85162860497&doi=10.1007%2fs11136-023-03459-1&pa

Comments (0)

No login
gif