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SCI Abstract
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Assessing the efficacy of coproduction to better understand the barriers to achieving sustainability in NHS chronic kidney services and create alternate pathways
Abstract Context Too many people living with chronic kidney disease are opting for and starting on hospital-based dialysis...
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Evaluating meaningful impact of Patient and Public Involvement: A Q methodology study among researchers and young people with a chronic condition
Abstract Introduction Although Patient and Public Involvement (PPI) of young people with a chronic condition (YPCC) is rec...
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Operationalizing a patient engagement plan for health research: Sharing a codesigned planning template from a national clinical trial
Abstract Introduction Engaging with patients about their lived experience of health and illness and their experience withi...
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Testing the effects on information use by older versus younger women of modality and narration style in a hospital report card
Abstract Background Hospital report cards (HRCs) are usually presented in a textual and factual format, likely hampering i...
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Engaging young people within a collaborative knowledge mobilization network: Development and evaluation
Abstract Background It is critical that mental health systems place a focus on prevention and early intervention focused o...
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Demographics, health literacy and health locus of control beliefs of Australian women who take complementary medicine products during pregnancy and breastfeeding: A cross‐sectional, online, national survey
Abstract Background Pregnant and breastfeeding women's use of complementary medicine products (CMPs) is common, and possib...
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Journey to Transplant: Developing a social support network counselling intervention to improve kidney transplantation
Abstract Context Kidney transplant is superior to dialysis for the treatment of end-stage kidney disease, but accessing tr...
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A qualitative exploration of the barriers and facilitators affecting ethnic minority patient groups when accessing medicine review services: Perspectives of healthcare professionals
Abstract Introduction Healthcare inequalities and ethnicity are closely related. Evidence has demonstrated that patients f...
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Exploring the expectations, experiences and tensions of refugee patients and general practitioners in the quality of care in general practice
Abstract Background Refugees and asylum seekers arrive in the Australian community with complex health needs and expectati...
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Expectations of a new opt‐out system of consent for deceased organ donation in England: A qualitative interview study
Abstract Introduction In 2020 England moved to an opt-out deceased donation law. We aimed to investigate the views of a mi...
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Adolescents encouraging healthy lifestyles through a peer‐led social marketing intervention: Training and key competencies learned by peer leaders
Abstract Background Adolescents who participate as peer leaders can benefit and acquire competencies from their peer leade...
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‘A lot of small things make a difference’. Mental health and strategies of coping during the COVID‐19 pandemic
Abstract Introduction The social and economic consequences of COVID-19 have the potential to affect individuals and popula...
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Swallowing the pill of adverse effects: A qualitative study of patients' and pharmacists' experiences and decision‐making regarding the adverse effects of chronic pain medications
Abstract Introduction Pharmacological treatments of chronic pain can lead to numerous and sometimes serious adverse effect...
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‘You have to do what is best’: The lived reality of having a child who is repeatedly hospitalized because of acute lower respiratory infection
Abstract Introduction Hospitalization of children is traumatic for children and their families. Little is known about the ...
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Patients at the centre after a health care incident: A scoping review of hospital strategies targeting communication and nonmaterial restoration
Abstract Objective This study aimed to provide an overview of the strategies adopted by hospitals that target effective co...
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Part of the solution: A survey of community organisation perspectives on barriers and facilitating actions to Advance Care Planning in British Columbia, Canada
Abstract Background Despite the established benefits of Advance Care Planning (ACP), engagement remains low in British Col...
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Qualitative investigation of factors impacting pre‐exposure prophylaxis initiation and adherence in sexual minority men
Abstract Introduction Men who have sex with men continue to account for the majority of new HIV infections in the United S...
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Experiences, perceptions and expectations of health services amongst marginalized populations in urban Australia: A meta‐ethnographic review of the literature
Abstract Background Poor health outcomes amongst marginalized groups result in part from health inequities related to soci...
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Conceptualisations of positive mental health and wellbeing among children and adolescents in low‐ and middle‐income countries: A systematic review and narrative synthesis
Abstract Background Mental illnesses are the leading causes of global disease burden. The impact is heightened in low- and...
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Capturing learning from public involvement with people experiencing homelessness to help shape new physiotherapy research: Utilizing a reflective model with an under‐served, vulnerable population
Abstract Introduction People experiencing homelessness (PEH) have poorer health than housed people but face barriers acces...
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A framework for involving coproduction partners in research about young people with type 1 diabetes
Abstract Background Involvement of end-users in research can enhance its quality, relevance, credibility and legitimacy; h...
Health Expectations
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Engaging veteran stakeholders to identify patient‐centred research priorities for optimizing implementation of lung cancer screening
Abstract Background Patient engagement in research agenda setting is increasingly being seen as a strategy to improve the ...
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The lived experience of a novel disruptive therapy in a group of men and boys with haemophilia A with inhibitors: Emi & Me
Abstract Background People with haemophilia A and inhibitors (PwHi) suffer more orthopaedic complications, bleeding and pa...
Health Expectations
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The relative importance of information items and preferred mode of delivery when disseminating results from trials to participants: A mixed‐methods study
Abstract Background Participants want to receive the results of trials that they have participated in. Dissemination pract...
Health Expectations
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Views of healthcare consumer representatives on defensive practice: ‘We are your biggest advocate and supporter… not the enemy’
Abstract Background The patient–clinician interaction is a site at which defensive practice could occur, when ...
Health Expectations
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‘I just thought that it was such an impossible thing’: A qualitative study of barriers and facilitators to discontinuing long‐term use of benzodiazepine receptor agonists using the Theoretical Domains Framework
Abstract Introduction Existing interventions to reduce long-term benzodiazepine receptor agonist (BZRA) use lack theoretic...
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Barriers and facilitators to hepatitis C screening and treatment for people with lived experience of homelessness: A mixed‐methods systematic review
Abstract Background People experiencing homelessness have an increased risk of hepatitis C virus (HCV) infection, with rat...
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Development and field testing of a decision aid to facilitate shared decision making for adults newly diagnosed with attention‐deficit hyperactivity disorder
Abstract Background The number of individuals who are diagnosed with attention-deficit hyperactivity disorder (ADHD) durin...
Health Expectations
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How might diabetes organisations address diabetes‐related stigma? Findings from a deliberative democratic case study
Abstract Introduction This study sought to identify how diabetes organisations conceptualize the problem of diabetes-relat...
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How paediatric departments in Sweden facilitate giving children a voice on their experiences of healthcare: A cross‐sectional study
Abstract Background In January 2020, the United Nations Convention on the Rights of the Child was incorporated into Swedis...
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