Exploring Cancer Patients’ Perspectives on Chemotherapy-Induced Peripheral Neuropathy Experiences and Its Management: A Qualitative Study

AppendixResearch Title: Exploring Chemotherapy-Induced Peripheral Neuropathy (CIPN) Experiences Among Cancer Patients in Malaysia

Interview Guide.

1. Can you describe to me your CIPN symptoms?

Do you feel any of these? Feeling of numbness or ‘pins and needles’ in your hands and feet; difficulty picking up an object or buttoning clothing; ringing in your ears or loss of hearing; changes in vision; sudden, stabbing pains in your hands or feet; constipation/difficulty urinating; muscle weakness or cramps; loss of balance or having difficulty walking; and feeling heat and cold, more or less than usual.

2. Describe how the symptoms that you experience above affect your daily activities?

3. What do you do when you experience CIPN? Any treatment or medication applied? Please explain.

4. Do you report CIPN to your doctor/oncologist? How was it addressed?

5. How much relieve has CIPN treatment or medication provided? Percentage scale will be used (0%, 25%, 50%, 75%, 100%).

6. How long do you have to wait for the medication to work for you to resume your daily activities comfortably?

7. How did you take your CIPN treatment? (Regularly as prescribed/only when you have symptoms?) Please explain.

8. Do you have any negative experiences (e.g. side effects) with the medication for CIPN? And how does that affect your daily activities?

9. Overall, how do you perceive your CIPN management? (Is it necessary, effective, safe?).

10. Are you afraid of the potential long-term use of medication for CIPN? Please explain.

11. Besides the medication given by your oncologist, do you use any other complementary and alternative treatment or any other strategies to manage your CIPN? Please explain its use (what were the strategies, how they were used and its effectiveness).

12. Based on your opinion, what are the barriers/problems with regard to the CIPN management?

13. What are your views on the usage of a more effective new medication for CIPN?

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