Hudson MM, Ness KK, Gurney JG, Mulrooney DA, Chemaitilly W, Krull KR, et al. Clinical ascertainment of health outcomes among adults treated for childhood cancer. JAMA. 2013;309:2371–81.

CAS  PubMed  PubMed Central  Google Scholar 

Bhakta N, Liu Q, Ness KK, Baassiri M, Eissa H, Yeo F, et al. The cumulative burden of surviving childhood cancer: an initial report from the St Jude Lifetime Cohort Study (SJLIFE). Lancet. 2017;390:2569–82.

PubMed  PubMed Central  Google Scholar 

Daniel L, Kazak AE, Li Y, Hobbie W, Ginsberg J, Butler E, et al. Relationship between sleep problems and psychological outcomes in adolescent and young adult cancer survivors and controls. Support Care Cancer. 2016;24:539–46.

PubMed  Google Scholar 

Huang I-C, Brinkman TM, Kenzik K, Gurney JG, Ness KK, Lanctot J, et al. Association between the prevalence of symptoms and health-related quality of life in adult survivors of childhood cancer: a report from the St Jude lifetime cohort study. J Clin Oncol. 2013;31:4242.

PubMed  PubMed Central  Google Scholar 

Rach AM, Crabtree VM, Brinkman TM, Zeltzer L, Marchak JG, Srivastava D, et al. Predictors of fatigue and poor sleep in adult survivors of childhood Hodgkin’s lymphoma: a report from the Childhood Cancer Survivor Study. J Cancer Surviv. 2017;11:256–63.

PubMed  Google Scholar 

Reulen RC, Frobisher C, Winter DL, Kelly J, Lancashire ER, Stiller CA, et al. Long-term risks of subsequent primary neoplasms among survivors of childhood cancer. JAMA. 2011;305:2311–9.

CAS  PubMed  Google Scholar 

Buhr K, Dugas MJ. The intolerance of uncertainty scale: psychometric properties of the English version. Behav Res Ther. 2002;40:931–45.

CAS  PubMed  Google Scholar 

Molton IR, Koelmel E, Curran M, Von Geldern G, Ordway A, Alschuler KN. Pilot intervention to promote tolerance for uncertainty in early multiple sclerosis. Rehabil Psychol. 2019;64:339–50.

PubMed  Google Scholar 

Carleton RN. Into the unknown: a review and synthesis of contemporary models involving uncertainty. J Anxiety Disord. 2016;39:30–43.

PubMed  Google Scholar 

Dugas MJ, Freeston MH, Ladouceur R. Intolerance of uncertainty and problem orientation in worry. Cogn Ther Res. 1997;21:593–606.

Google Scholar 

Dugas MJ, Gosselin P, Ladouceur R. Intolerance of uncertainty and worry: investigating specificity in a nonclinical sample. Cogn Ther Res. 2001;25:551–8.

Google Scholar 

Bottesi G, Noventa S, Freeston MH, Ghisi M. Seeking certainty about intolerance of uncertainty: addressing old and new issues through the intolerance of uncertainty scale-revised. PLoS One. 2019;14:e0211929.

CAS  PubMed  PubMed Central  Google Scholar 

Boswell JF, Thompson-Hollands J, Farchione TJ, Barlow DH. Intolerance of uncertainty: a common factor in the treatment of emotional disorders: intolerance of uncertainty. J Clin Psychol. 2013;69:630–45.

PubMed  Google Scholar 

Carleton RN, Mulvogue MK, Thibodeau MA, McCabe RE, Antony MM, Asmundson GJG. Increasingly certain about uncertainty: intolerance of uncertainty across anxiety and depression. J Anxiety Disord. 2012;26:468–79.

PubMed  Google Scholar 

McEvoy PM, Hyett MP, Shihata S, Price JE, Strachan L. The impact of methodological and measurement factors on transdiagnostic associations with intolerance of uncertainty: a meta-analysis. Clin Psychol Rev. 2019;73:101778.

PubMed  Google Scholar 

Lebel S, Maheu C, Tomei C, Bernstein LJ, Courbasson C, Ferguson S, et al. Towards the validation of a new, blended theoretical model of fear of cancer recurrence. Psycho-Oncol. 2018;27:2594–601.

Google Scholar 

Kurita K, Garon EB, Stanton AL, Meyerowitz BE. Uncertainty and psychological adjustment in patients with lung cancer. Psycho-Oncol. 2013;22:1396–401.

Google Scholar 

Eisenberg SA, Kurita K, Taylor-Ford M, Agus DB, Gross ME, Meyerowitz BE. Intolerance of uncertainty, cognitive complaints, and cancer-related distress in prostate cancer survivors. Psycho-Oncol. 2015;24:228–35.

Google Scholar 

Heathcote LC, Webster SN, Loecher N, Spunt SL, Simon P, Pradhan P, et al. The bodily threat monitoring scale: development and preliminary validation in adult and childhood cancer survivors. Psycho-Oncol. 2023;32:1885–94.

Google Scholar 

Waroquier P, Delevallez F, Razavi D, Merckaert I. Psychological factors associated with clinical fear of cancer recurrence in breast cancer patients in the early survivorship period. Psycho-Oncol. 2022;31:1877–85.

Google Scholar 

Tutelman PR, Chambers CT, Heathcote LC, Fernandez CV, Flanders A, Patton M, et al. Measuring fear of cancer recurrence in survivors of childhood cancer: development and preliminary validation of the fear of cancer recurrence inventory (FCRI)-child and parent versions. Psycho-Oncol. 2022;31:911–9.

Google Scholar 

Mitmansgruber H, Smrekar U, Rabanser B, Beck T, Eder J, Ellemunter H. Psychological resilience and intolerance of uncertainty in coping with cystic fibrosis. J Cyst Fibros. 2016;15:689–95.

PubMed  Google Scholar 

Heathcote LC, Loecher N, Simon P, Spunt SL, Jordan A, Tutelman PR, et al. Symptom appraisal in uncertainty: a theory-driven thematic analysis with survivors of childhood cancer. Psychol Health. 2021;36:1182–99.

PubMed  Google Scholar 

Fischerauer SF, Talaei-Khoei M, Vissers FL, Chen N, Vranceanu A-M. Pain anxiety differentially mediates the association of pain intensity with function depending on level of intolerance of uncertainty. J Psychiatr Res. 2018;97:30–7.

PubMed  Google Scholar 

Carleton RN, Thibodeau MA, Osborne JW, Taylor S, Asmundson GJG. Revisiting the fundamental fears: towards establishing construct independence. Pers Individ Differ. 2014;63:94–9.

Google Scholar 

López-Martínez AE, Ramírez-Maestre C, Serrano-Ibáñez ER, Ruiz-Párraga GT, Esteve R. Intolerance of uncertainty moderates the relationship between catastrophizing, anxiety, and perceived pain in people with chronic nononcological pain. Pain Med. 2022;23:1793–9.

PubMed  Google Scholar 

Tanna V, Cunningham SJ, Simon P, Spunt SL, Schapira L, Simons LE, et al. Pain and intolerance of uncertainty among adolescent and young adult cancer survivors. J Pain. 2021;22:611.

Google Scholar 

Neville A, Kopala-Sibley DC, Soltani S, Asmundson GJG, Jordan A, Carleton RN, et al. A longitudinal examination of the interpersonal fear avoidance model of pain: the role of intolerance of uncertainty. Pain. 2021;162:152–60.

PubMed  Google Scholar 

Alberts NM, Leisenring W, Whitton J, Stratton K, Jibb L, Flynn J, Pizzo A, Brinkman TM, Birnie K, Gibson TM, McDonald A. Characterization of chronic pain, pain interference, and daily pain experiences in adult survivors of childhood cancer: a report from the childhood cancer survivor study. Pain. 2024;165(11):2530–43.

CAS  PubMed  PubMed Central  Google Scholar 

Leisenring WM, Mertens AC, Armstrong GT, Stovall MA, Neglia JP, Lanctot JQ, et al. Pediatric cancer survivorship research: experience of the Childhood Cancer Survivor Study. JCO. 2009;27:2319–27.

Google Scholar 

Phillips SM, Padgett LS, Leisenring WM, Stratton KK, Bishop K, Krull KR, et al. Survivors of childhood cancer in the United States: prevalence and burden of morbidity. Cancer Epidemiol Biomarkers Prev. 2015;24:653–63.

PubMed  PubMed Central  Google Scholar 

Robison LL, Armstrong GT, Boice JD, Chow EJ, Davies SM, Donaldson SS, et al. The childhood cancer survivor study: a National Cancer Institute–supported resource for outcome and intervention research. JCO. 2009;27:2308–18.

Google Scholar 

Pizzo A, Leisenring WM, Stratton KL, Lamoureux É, Flynn JS, Alschuler K, Krull KR, Jibb LA, Nathan PC, Olgin JE, Stinson JN. Fear of cancer recurrence in adult survivors of childhood cancer. JAMA Network Open. 2024;7(10):e2436144-.

National Cancer Institute. Common terminology criteria for adverse events v4.0 [Internet]. National Institute of Health; 2009. Available from: https://ctep.cancer.gov/protocoldevelopment/electronic_applications/ctc.htm#ctc_40

Carleton RN, Norton MAPJ, Asmundson GJG. Fearing the unknown: a short version of the intolerance of uncertainty scale. J Anxiety Disord. 2007;21:105–17.

PubMed  Google Scholar 

Wilson EJ, Stapinski L, Dueber DM, Rapee RM, Burton AL, Abbott MJ. Psychometric properties of the intolerance of uncertainty scale-12 in generalized anxiety disorder: assessment of factor structure, measurement properties and clinical utility. J Anxiety Disord. 2020;76:102309.

PubMed  Google Scholar 

Spitzer RL, Kroenke K, Williams JB, Lowe B. A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Internal Med. 2006;166:1092–7.

Google Scholar 

Kroenke K, Spitzer RL. The PHQ-9: a new depression diagnostic and severity measure. Psychiatr Ann. 2002;32:509–15.

Google Scholar 

Kroenke K, Spitzer RL, Williams JB. The PHQ-9: validity of a brief depression severity measure. J Gen Intern Med. 2001;16:606–13.

CAS  PubMed  PubMed Central  Google Scholar 

Kroenke K, Strine TW, Spitzer RL, Williams JBW, Berry JT, Mokdad AH. The PHQ-8 as a measure of current depression in the general population. J Affect Disord. 2009;114:163–73.

PubMed  Google Scholar 

Ware JE KM Gandek B. SF-36 health survey: manual and interpretation guide. Lincoln, RI: Quality Metric Incorporated; 2003.

Buysse DJ, Yu L, Moul DE, Germain A, Stover A, Dodds NE, et al. Development and validation of patient-reported outcome measures for sleep disturbance and sleep-related impairments. Sleep. 2010;33:781–92.

PubMed  PubMed Central  Google Scholar 

Yu L, Buysse DJ, Germain A, Moul DE, Stover A, Dodds NE, et al. Development of short forms from the PROMIS sleep disturbance and sleep-related impairment item banks. Behav Sleep Med. 2011;10:6–24.

PubMed  PubMed Central  Google Scholar 

Treede RD, Rief W, Barke A, Aziz Q, Bennett MI, Benoliel R, et al. A classification of chronic pain for ICD-11. Pain. 2015;156:1003–7.

PubMed  PubMed Central  Google Scholar 

Sullivan J, Bishop S, Pivik J. The pain catastrophizing scale: development and validation. Psychol Assess. 1995;7:524–32.

Google Scholar 

Cleeland C, Ryan K. Pain assessment: global use of the brief pain inventory. Ann Acad Med Singapore. 1994;23:129–38.

CAS  PubMed  Google Scholar 

Gibson B, Rosser BA, Schneider J, Forshaw MJ. The role of uncertainty intolerance in adjusting to long-term physical health conditions: a systematic review. PLoS One. 2023;18:e0286198.