Improving Communication: A Narrative Synthesis of Interventions for HIV Disclosure to Pediatric Populations

World Health Organization. Global report on neglected tropical diseases 2023. World Health Organization. 2023. https://j0294-who-hiv-epi-factsheet-v7.pdf. Accessed 29 Nov 2023.

Xie Y, Zhu J, Lan G, Ruan Y. Benefits of early ART initiation on mortality among people with HIV. The Lancet HIV. 2022;9(6):e377. https://doi.org/10.1016/S2352-3018(22)00098-4.

Article  PubMed  Google Scholar 

Kumah E, Boakye DS, Boateng R, Agyei E. Advancing the global fight against HIV/AIDS: strategies, barriers, and the road to eradication. Ann Glob Health. 2023;89(1). https://doi.org/10.5334/aogh.4277.

Ansah D, Kumah E, Bawontuo V, Agyei-Baffour P, Afriyie EK. Determinants of viral load non-suppression among people living with HIV on antiretroviral therapy in Kumasi. Ghana Ghana Med J. 2021;55(2):111–7.

Article  Google Scholar 

Boakye DS, Kumah E, Adjorlolo S. The fight for an AIDS-free world: confronting the stigma, reaching the marginalized. Ann Glob Health. 2024 Jul 5;90(1). https://doi.org/10.5334/aogh.4414.

Boakye DS, Kumah E, Adjorlolo S. Policies and practices facilitating access to and uptake of hiv testing services among adolescents in Sub-Sahara Africa: a narrative review. Curr HIV/AIDS Rep. 2024;21(4):220–36.

Article  PubMed  Google Scholar 

Arage G, Assefa M, Worku T, Semahegn A. Survival rate of HIV-infected children after initiation of the antiretroviral therapy and its predictors in Ethiopia: a facility-based retrospective cohort. SAGE open medicine. 2019;7:2050312119838957. https://doi.org/10.1177/2050312119838957.

Article  PubMed  PubMed Central  Google Scholar 

Madiba S, Diko C. The consequences of delaying telling children with perinatal HIV about their diagnosis as perceived by healthcare workers in the eastern cape; a qualitative study. Children. 2020;7(12):289. https://doi.org/10.3390/children7120289.

Article  PubMed  PubMed Central  Google Scholar 

Finnegan A, Langhaug L, Schenk K, Puffer ES, Rusakaniko S, Choi Y, Mahaso S, Green EP. The prevalence and process of pediatric HIV disclosure: a population-based prospective cohort study in Zimbabwe. PLoS ONE. 2019;14(5):e0215659. https://doi.org/10.1371/journal.pone.0215659.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Armoon B, Fleury MJ, Higgs P, Bayat AH, Bayani A, Mohammadi R, Ahounbar E. Prevalence, socio-demographics and service use determinants associated with disclosure of HIV/AIDS status to infected children: a systematic review and meta-analysis by 1985–2021. Arch Public Health. 2022;80(1):154. https://doi.org/10.1186/s13690-022-00910-6.

Article  PubMed  PubMed Central  Google Scholar 

Amankwah-Poku M, Klutsey DA, Asante KO. Disclosure and health-related outcomes among children living with HIV and their caregivers. AIDS Res Ther. 2021;18:1–8. https://doi.org/10.1186/s12981-021-00337-z.

Article  Google Scholar 

Kalembo FW, Kendall GE, Ali M, Chimwaza AF. Socio-demographic, clinical, and psychosocial factors associated with primary caregivers’ decisions regarding HIV disclosure to their child aged between 6 and 12 years living with HIV in Malawi. PLoS ONE. 2019;14(1):e0210781. https://doi.org/10.1371/journal.pone.0210781.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Madiba S, Mokgatle M. Fear of stigma, beliefs, and knowledge about HIV are barriers to early access to HIV testing and disclosure for perinatally infected children and adolescents in rural communities in South Africa. South African Family Practice. 2017;59(5):175–81.

Article  Google Scholar 

Maseko Y, Madiba S. Pain, anger, and the fear of being discovered persist long after the disclosure of HIV serostatus among adolescents with perinatal HIV in rural communities in South Africa. Children. 2020;7(12):261. https://doi.org/10.3390/children7120261.

Article  PubMed  PubMed Central  Google Scholar 

van Opstal SE, Wagener MN, Miedema HS, Utens EM, Aarsen FK, van der Knaap LC, van Gorp EC, van Rossum AM, Roelofs PD. School functioning of children with perinatal HIV-infection in high-income countries: A systematic review. PLoS ONE. 2021;16(6):e0252746. https://doi.org/10.1371/journal.pone.0252746.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Green BN, Johnson CD, Adams A. Writing narrative literature reviews for peer-reviewed journals: secrets of the trade. J Chiropr Med. 2006;5(3):101–17. https://doi.org/10.1016/S0899-3467(07)60142-6.

Article  PubMed  PubMed Central  Google Scholar 

Lansdown G, Vaghri Z. Article 1: Definition of a Child. InMonitoring State Compliance with the UN Convention on the Rights of the Child: An Analysis of Attributes. 2022:407–412. Cham, Switzerland: Springer International Publishing. https://doi.org/10.1007/978-3-030-84647-3_40.

Beima-Sofie KM, Brandt L, Hamunime N, Shepard M, Uusiku J, John-Stewart GC, O’Malley G. Pediatric HIV disclosure intervention improves knowledge and clinical outcomes in HIV-infected children in Namibia. JAIDS J Acquir Immune Defic Syndr. 2017;75(1):18–26. https://doi.org/10.1097/QAI.0000000000001290.

Article  PubMed  Google Scholar 

Cantrell K, Patel N, Mandrell B, Grissom S. Pediatric HIV disclosure: a process-oriented framework. AIDS Educ Prev. 2013;25(4):302–14.

Article  PubMed  Google Scholar 

Lee CL, Johann-Liang R. Disclosure of the diagnosis of HIV/AIDS to children born of HIV-infected mothers. AIDS Patient Care STDS. 1999;13(1):41–5. https://doi.org/10.1089/apc.1999.13.41.

Article  CAS  PubMed  Google Scholar 

Lowenthal ED, Jibril HB, Sechele ML, Mathuba K, Tshume O, Anabwani GM. Disclosure of HIV status to HIV-infected children in a large African treatment center: Lessons learned in Botswana. Child Youth Serv Rev. 2014;1(45):143–9.

Article  Google Scholar 

Orelly T, Welch H, Machine E, Pameh W, Duke T. Human immunodeficiency virus status disclosure and education for children and adolescents in Papua New Guinea. J Paediatr Child Health. 2018;54(7):728–34.

Article  PubMed  Google Scholar 

Vreeman RC, Nyandiko WM, Marete I, Mwangi A, McAteer CI, Keter A, Scanlon ML, Ayaya SO, Aluoch J, Hogan J. Evaluating a patient-centred intervention to increase disclosure and promote resilience for children living with HIV in Kenya. AIDS. 2019;1(33):S93-101. https://doi.org/10.1097/QAD.0000000000002183.

Article  Google Scholar 

Gerson AC, Joyner M, Fosarelli P, Butz A, Wissow L, Lee S, Marks P, Hutton N. Disclosure of HIV diagnosis to children: when, where, why, and how. J Pediatr Health Care. 2001;15(4):161–7. https://doi.org/10.1067/mph.2001.114835.

Article  CAS  PubMed  Google Scholar 

Beck-Sagué CM, Dévieux J, Pinzón-Iregui MC, Lerebours-Nadal L, Abreu-Pérez R, Bertrand R, Rouzier V, Gaston S, Ibanez G, Halpern M, Pape JW. Disclosure of their HIV status to perinatally infected youth using the adapted Blasini disclosure model in Haiti and the Dominican Republic: preliminary results. AIDS. 2015;1(29):S91–8. https://doi.org/10.1097/QAD.0000000000000665.

Article  Google Scholar 

Lesch AI, Swartz L, Kagee A, Moodley K, Kafaar Z, Myer L, Cotton M. Paediatric HIV/AIDS disclosure: towards a developmental and process-oriented approach. AIDS Care. 2007;19(6):811–6. https://doi.org/10.1080/09540120601129301.

Article  CAS  PubMed  Google Scholar 

Bingaman AR, Hamilton AB, Olivero R, Crowell CS, Fair CD. Literally the hardest part about having a positive child is disclosure”: Child and family stigma management strategies among US parents of internationally adopted children with perinatally-acquired HIV. SSM-Qual Res Health. 2022;1(2):100122. https://doi.org/10.1016/j.ssmqr.2022.100122.

Article  Google Scholar 

Nicastro E, Continisio GI, Storace C, Bruzzese E, Mango C, Liguoro I, Guarino A, Officioso A. Family group psychotherapy to support the disclosure of HIV status to children and adolescents. AIDS Patient Care STDS. 2013;27(6):363–9. https://doi.org/10.1089/apc.2012.0465.

Article  PubMed  PubMed Central  Google Scholar 

Paintsil E, Kyriakides TC, Antwi S, Renner L, Nichols JS, Amissah K, Kusah JT, Alhassan A, Ofori IP, Catlin AC, Gan G. Clinic-based pediatric disclosure intervention trial improves pediatric HIV status disclosure in Ghana. JAIDS J Acquir Immune Defic Syndr. 2020;84(1):122–31. https://doi.org/10.1097/QAI.0000000000002316.

Article  PubMed  Google Scholar 

Radcliffe C, Sam A, Matos Q, Antwi S, Amissah K, Alhassan A, Ofori IP, Xu Y, Deng Y, Reynolds NR, Paintsil E. Sankofa pediatric HIV disclosure intervention did not worsen depression scores in children living with HIV and their caregivers in Ghana. BMC Public Health. 2020;20:1. https://doi.org/10.1186/s12889-020-09678-2.

Article  Google Scholar 

Reynolds NR, Ofori-Atta A, Lartey M, Renner L, Antwi S, Enimil A, Catlin AC, Fernando S, Kyriakides TC, Paintsil E. SANKOFA: a multisite collaboration on paediatric HIV disclosure in Ghana. AIDS. 2015;1(29):S35-45. https://doi.org/10.1097/QAD.0000000000000725.

Article  Google Scholar 

Klingberg S, King R, Seeley J, Lubwama R, Namuganga M, Nabiryo B, Etima M, Musoke P, Butler LM. Courage and confidence to stop lying: caregiver perspectives on a video to support paediatric HIV disclosure in Kampala. Uganda African J AIDS Res. 2018;17(3):273–9. https://doi.org/10.2989/16085906.2018.1521850.

Article  Google Scholar 

Beima-Sofie KM, Brandt L, Hamunime N, Shepard M, Uusiku J, John-Stewart GC, O’Malley G. Pediatric HIV disclosure intervention improves knowledge and clinical outcomes in HIV-infected children in Namibia. JAIDS J Acquir Immune Defic Syndr. 2017;75(1):18–26.

Article 

Comments (0)

No login
gif