World Health Organization. WHO. [cited 2024 Jun 15]. Diabetes. Available from: https://www.who.int/health-topics/diabetes

IDF Diabetes Atlas, 10th edn. [Internet]. Brussels, Belgium; 2021 [cited 2024 Jun 13]. Available from: https://diabetesatlas.org/

Haugstvedt A, Wentzel-Larsen T, Rokne B, Graue M. Perceived family burden and emotional distress: similarities and differences between mothers and fathers of children with type 1 diabetes in a population-based study. Pediatr Diabetes. 2011;12(2):107–14.

Article  PubMed  Google Scholar 

Dhada B, Blackbeard D. Caregivers of children with diabetes mellitus: challenges of caring for and perceptions of consultations in a South African public sector context. South Afr Fam Pract. 2019;61(4):117–35.

Article  Google Scholar 

Khemakhem R, Dridi Y, Hamza M, Ben Hamouda A, Khlayfia Z, Ouerda H, et al. How do parents of children with type 1 diabetes mellitus cope and how does this condition affect caregivers’ mental health? Arch Pediatr. 2020;27(5):265–9.

Article  PubMed  CAS  Google Scholar 

Greening L, Stoppelbein L, Cheeks K. Racial/ethnic disparities in the risk of posttraumatic stress disorder symptoms among mothers of children diagnosed with cancer and type 1 diabetes mellitus. Psychol Trauma. 2017;9(3):325–33.

Article  PubMed  Google Scholar 

Rechenberg K, Grey M, Sadler L. Stress and posttraumatic stress in mothers of children with type 1 diabetes. J Fam Nurs. 2017;23(2):201–25.

Article  PubMed  PubMed Central  Google Scholar 

Arab M, Bernstein C, Haghshenas A, Ranjbar H. Factors associated with caregiver burden for mothers of children undergoing acute lymphocytic leukemia (ALL) treatment. Palliat Support Care. 2020;18(4):405–12.

Article  PubMed  Google Scholar 

Pomerantz EM, Wang Q. The role of parental control in children’s development in Western and East Asian countries. Curr Dir Psychol Sci. 2009;18(5):285–9.

Article  Google Scholar 

Ng R, Indran N. Societal perceptions of caregivers linked to culture across 20 countries: evidence from a 10-billion-word database. PLoS ONE. 2021;16(7):e0251161.

Article  PubMed  PubMed Central  CAS  Google Scholar 

Mashayekhi F, Jozdani R, Chamak M, Mehni S. Caregiver burden and social support in mothers with β-thalassemia children. Global J Health Sci. 2016;8(12):p206.

Article  Google Scholar 

Capistrant BD, Friedemann-Sánchez G, Pendsey S. Diabetes stigma, parent depressive symptoms and type-1 diabetes glycemic control in India. Soc Work Health Care. 2019;58(10):919–35.

Article  PubMed  Google Scholar 

Sussman LK. 2004 The role of culture in definitions interpretations and management of illness. In: Handb Cult Ther Health Routledge

Al Slamah T, Nicholl BI, Alslail FY, Harris L, Melville CA, Kinnear D. Cultural adaptation of self-management of type 2 diabetes in Saudi Arabia (qualitative study). PLoS ONE. 2020;15(7):e0232904.

Article  PubMed  PubMed Central  CAS  Google Scholar 

Khandan M, Abazari F, Tirgari B, Cheraghi MA. Lived experiences of mothers with diabetic children from the transfer of caring role. Int J Community Based Nurs Midwifery. 2018;6(1):76–88.

PubMed  Google Scholar 

Khandan M, Tirgari B, Abazari F, Cheraghi MA. Mothers’ experiences of maze path of type 1 diabetes diagnosis in children. Ethiop J Health Sci. 2018;28(5):635–44.

PubMed  PubMed Central  Google Scholar 

Moghadam YH, Zeinaly Z, Alhani F, Fard MG. 2022 Caring for children with diabetes in the shadow of COVID-19 pandemic: challenges experienced by Iranian mothers. Journal of Iranian Medical Council [Internet]. Jun 8 [cited 2024 Jun 1]; Available from: https://publish.kne-publishing.com/index.php/JIMC/article/view/9574

Moghadam YH, Zeinaly Z, Alhani F. How mothers of a child with type 1 diabetes cope with the burden of care: a qualitative study. BMC Endocr Disord. 2022;22(1):129.

Article  PubMed  PubMed Central  Google Scholar 

Asaad M, Forde R, AlFares A, Bin Abbas B, Sturt J. Experiences and needs of Saudi mothers when a child or adolescent is diagnosed with type 1 diabetes mellitus: a qualitative study. Int J Qual Stud Health Well-being. 2022;17(1):2107151.

Article  PubMed  PubMed Central  Google Scholar 

Yacoub M, Rosengren K, D’emeh W. Experience and educational needs of Arab parental caregivers regarding their children newly diagnosed with type 1 diabetes in Saudi Arabia: a qualitative study. Home Health Care Manag Pract. 2023;35(3):190–9.

Article  Google Scholar 

Lin FY, Lee TY. Managing type 1 diabetes of a child: parents’ perspectives. Child Care Health Dev. 2024;50(2):e13238.

Article  PubMed  Google Scholar 

Asuquo EF, Akpan-Idiok PA, Asuquo EF, Akpan-Idiok PA. 2020 The exceptional role of women as primary caregivers for people living with HIV/AIDS in Nigeria, West Africa. In: Suggestions for Addressing Clinical and Non-Clinical Issues in Palliative Care [Internet]. IntechOpen [cited 2024 Jun 11]. Available from: https://www.intechopen.com/chapters/73369

Swinkels J, van Tilburg T, Verbakel E, van BroeseGroenou M. Explaining the gender gap in the caregiving burden of partner caregivers. J Gerontol Ser B. 2019;74(2):309–17.

Google Scholar 

Sullivan-Bolyai S, Deatrick J, Gruppuso P, Tamborlane W, Grey M. Constant vigilance: mothers’ work parenting young children with type 1 diabetes. J Pediatr Nurs. 2003;18(1):21–9.

Article  PubMed  CAS  Google Scholar 

Kimbell B, Lawton J, Boughton C, Hovorka R, Rankin D. Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence. BMC Pediatr. 2021;21(1):160.

Article  PubMed  PubMed Central  CAS  Google Scholar 

Cole L, Ridings L, Phillips SM. Stress and coping factors affecting health-related quality of life in parents of children with congenital heart disease: an integrative review. Pediatr Cardiol. 2024;45(3):457–70.

Article  PubMed  Google Scholar 

Saßmann H, Kim-Dorner SJ, Berndt V, Biester T, Dehn-Hindenberg A, Heidtmann B, et al. Understanding daily, emotional, and physical burdens and needs of parents caring for children with type 1 diabetes. J Diabetes Res. 2022;2022(1):9604115.

PubMed  PubMed Central  Google Scholar 

Whittemore R, Jaser S, Chao A, Jang M, Grey M. Psychological experience of parents of children with type 1 diabetes: a systematic mixed-studies review. Diabetes Educ. 2012;38(4):562–79.

Article  PubMed  PubMed Central  Google Scholar 

Kazibwe J, Tran PB, Annerstedt KS. The household financial burden of non-communicable diseases in low- and middle-income countries: a systematic review. Health Res Policy Syst. 2021;19(1):96.

Article  PubMed  PubMed Central  Google Scholar 

Hawthorne K, Bennert K, Lowes L, Channon S, Robling M, Gregory JW, et al. The experiences of children and their parents in paediatric diabetes services should inform the development of communication skills for healthcare staff (the DEPICTED Study]. Diabet Med. 2011;28(9):1103–8.

Article  PubMed  CAS  Google Scholar 

Selvan C, Lathia T, Chawak S, Katdare P, Chittam M. Persons living with diabetes in India – Their experiences and expectations from the physician. In: Indian Journal of Endocrinology and Metabolism [Internet]. 2022 [cited 2024 Jun 11]. p. S20. Available from: https://journals.lww.com/indjem/abstract/2022/03001/abstract_44__persons_living_with_diabetes_in_india.56.aspx

Browne JL, Ventura A, Mosely K, Speight J. ‘I’m not a druggie, I’m just a diabetic’: a qualitative study of stigma from the perspective of adults with type 1 diabetes. BMJ Open. 2014;4(7):e005625.

Article  PubMed  PubMed Central  Google Scholar 

Liu NF, Brown AS, Folias AE, Younge MF, Guzman SJ, Close KL, et al. Stigma in people with type 1 or type 2 diabetes. Clin Diabetes. 2017;35(1):27–34.

Article  PubMed  PubMed Central  Google Scholar 

Grant C, Osanloo A. Understanding, selecting, and integrating a theoretical framework in dissertation research: creating the blueprint for your “house.” Administrative issues journal [Internet]. 2014 [cited 2024 Jun 28];4(2). Available from: https://dc.swosu.edu/aij/vol4/iss2/4/

ATLAS.ti [Internet]. [cited 2024 Jun 28]. Theoretical frameworks | examples & strategies. Available from: https://atlasti.com/guides/qualitative-research-guide-part-1/theoretical-framework