International Society of Nephrology. ISN Global Kidney Health Atlas [Internet]. 2023 [cited 2024 Sep 24].

Liyanage T, Ninomiya T, Jha V, Neal B, Patrice HM, Okpechi I, et al. Worldwide access to treatment for end-stage kidney disease: a systematic review. Lancet. 2015;385(9981):1975–82. https://doi.org/10.1016/S0140-6736(14)61601-9.

Article  PubMed  Google Scholar 

Himmelfarb J, Vanholder R, Mehrotra R, Tonelli M. The current and future landscape of dialysis. Nat Rev Nephrol. 2020;16(10):573–85. https://doi.org/10.1038/s41581-020-0315-4.

Article  PubMed  PubMed Central  Google Scholar 

Damery S, Sein K, Nicholas J, Baharani J, Combes G. The challenge of managing mild to moderate distress in patients with end stage renal disease: results from a multi-centre, mixed methods research study and the implications for renal service organisation. BMC Health Serv Res. 2019;19(1):989. https://doi.org/10.1186/s12913-019-4808-4.

Article  PubMed  PubMed Central  Google Scholar 

Willis MA, Hein LB, Hu Z, Saran R, Argentina M, Bragg-Gresham J, et al. Feeling better on hemodialysis: user-centered design requirements for promoting patient involvement in the prevention of treatment complications. J Am Med Inf Assoc. 2021;28(8):1612–31. https://doi.org/10.1093/jamia/ocab033.

Article  Google Scholar 

Zalai D, Szeifert L, Novak M. Psychological distress and depression in patients with chronic kidney disease. Semin Dial. 2012;25(4):428–38. https://doi.org/10.1111/j.1525-139X.2012.01100.x.

Article  PubMed  Google Scholar 

Legrand K, Speyer E, Stengel B, Frimat L, Ngueyon Sime W, Massy ZA, et al. Perceived health and quality of life in patients with CKD, including those with kidney failure: findings from National surveys in France. Am J Kidney Dis. 2020;75(6):868–78. https://doi.org/10.1053/j.ajkd.2019.08.026.

Article  PubMed  CAS  Google Scholar 

Teuwafeu DG, Sehbing M, Halle M-P, Mahamat M, Fouda H, Ashuntantang G. Quality of life and social reinsertion of patients on maintenance haemodialysis in four government funded hospitals in Cameroon. BMC Nephrol. 2024;25(1):335. https://doi.org/10.1186/s12882-024-03778-6.

Article  PubMed  PubMed Central  Google Scholar 

Weisbord SD, Mor MK, Sevick MA, Shields AM, Rollman BL, Palevsky PM, et al. Associations of depressive symptoms and pain with Dialysis adherence, health resource utilization, and mortality in patients receiving chronic Hemodialysis. Clin J Am Soc Nephrol. 2014;9(9):1594–602. https://doi.org/10.2215/CJN.00220114.

Article  PubMed  PubMed Central  Google Scholar 

Wingard RL, Pupim LB, Krishnan M, Shintani A, Ikizler TA, Hakim RM. Early intervention improves mortality and hospitalization rates in incident Hemodialysis patients: rightstart program. Clin J Am Soc Nephrol. 2007;2(6):1170–5. https://doi.org/10.2215/CJN.04261206.

Article  PubMed  Google Scholar 

Van De Luijtgaarden MWM, Caskey FJ, Wanner C, Chesnaye NC, Postorino M, Janmaat CJ, et al. Uraemic symptom burden and clinical condition in women and men of ≥ 65 years of age with advanced chronic kidney disease: results from the EQUAL study. Nephrol Dialysis Transplantation. 2019;34(7):1189–96. https://doi.org/10.1093/ndt/gfy155.

Article  CAS  Google Scholar 

Al-Naamani Z, Gormley K, Noble H, Santin O, Al Omari O, Al-Noumani H, et al. The lived experiences of fatigue among patients receiving haemodialysis in oman: a qualitative exploration. BMC Nephrol. 2024;25(1):239. https://doi.org/10.1186/s12882-024-03647-2.

Article  PubMed  PubMed Central  Google Scholar 

Abdel-Kader K, Unruh ML, Weisbord SD. Symptom burden, depression, and quality of life in chronic and End-Stage kidney disease. Clin J Am Soc Nephrol. 2009;4(6):1057–64. https://doi.org/10.2215/CJN.00430109.

Article  PubMed  PubMed Central  Google Scholar 

Lorig KR, Ritter PL, Laurent DD, Plant K. Internet-Based chronic disease Self-Management: A randomized trial. Med Care. 2006;44(11):964–71. https://doi.org/10.1097/01.mlr.0000233678.80203.c1.

Article  PubMed  Google Scholar 

Lorig KR, Holman HR. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1–7. https://doi.org/10.1207/S15324796ABM2601_01.

Article  PubMed  Google Scholar 

Bagriacik E, Dikmen BT. Self-management training in patients with chronic kidney disease undergoing hemodialysis: A systematic review. Semin Dial. 2023. https://doi.org/10.1111/sdi.13164. (dlj, 8911629.

Article  PubMed  Google Scholar 

Yangöz ŞT, Özer Z, Boz İ. Comparison of the effect of educational and self-management interventions on adherence to treatment in Hemodialysis patients: A systematic review and meta‐analysis of randomized controlled trials. Int J Clin Pract [Internet]. 2021 May;75(5). https://doi.org/10.1111/ijcp.13842. [cited 2024 Sep 24];.

Schäfer-Keller P, Dickenmann M, Berry DL, Steiger J, Bock A, De Geest S. Computerized patient education in kidney transplantation: testing the content validity and usability of the organ transplant information system (OTIS™). Patient Educ Couns. 2009;74(1):110–7. https://doi.org/10.1016/j.pec.2008.03.027.

Article  PubMed  Google Scholar 

Peng S, He J, Huang J, Lun L, Zeng J, Zeng S, et al. Self-management interventions for chronic kidney disease: a systematic review and meta-analysis. BMC Nephrol. 2019;20(1):142. https://doi.org/10.1186/s12882-019-1309-y.

Article  PubMed  PubMed Central  Google Scholar 

Wu R, Feng S, Quan H, Zhang Y, Fu R, Li H. Effect of self-determination theory on knowledge, treatment adherence, and self‐management of patients with maintenance hemodialysis. Hashmi MF, editor. Contrast Media & Molecular Imaging. 2022;2022(1):1416404. https://doi.org/10.1155/2022/1416404

Moattari M, Ebrahimi M, Sharifi N, Rouzbeh J. The effect of empowerment on the self-efficacy, quality of life and clinical and laboratory indicators of patients treated with hemodialysis: a randomized controlled trial. Health Qual Life Outcomes. 2012;10(1):115. https://doi.org/10.1186/1477-7525-10-115.

Article  PubMed  PubMed Central  Google Scholar 

Ren Q, Lian M, Liu Y, Thomas-Hawkins C, Zhu L, Shen Q. Effects of a transtheoretical model‐based WeChat health education programme on self‐management among haemodialysis patients: A longitudinal experimental intervention study. J Adv Nurs. 2019;75(12):3554–65. https://doi.org/10.1111/jan.14182.

Article  PubMed  Google Scholar 

Peters MDJ, Marnie C, Tricco AC, Pollock D, Munn Z, Alexander L, et al. Updated methodological guidance for the conduct of scoping reviews. JBI Evid Synthesis. 2020;18(10):2119–26. https://doi.org/10.11124/JBIES-20-00167.

Article  Google Scholar 

Pollock D, Davies EL, Peters MDJ, Tricco AC, Alexander L, McInerney P, et al. Undertaking a scoping review: A practical guide for nursing and midwifery students, clinicians, researchers, and academics. J Adv Nurs. 2021;77(4):2102–13. https://doi.org/10.1111/jan.14743.

Article  PubMed  PubMed Central  Google Scholar 

Khalil H, Peters MDj, Tricco AC, Pollock D, Alexander L, McInerney P, et al. Conducting high quality scoping reviews-challenges and solutions. J Clin Epidemiol. 2021;130:156–60. https://doi.org/10.1016/j.jclinepi.2020.10.009.

Article  PubMed  Google Scholar 

Munn Z, Peters MDJ, Stern C, Tufanaru C, McArthur A, Aromataris E. Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Med Res Methodol. 2018;18(1):143. https://doi.org/10.1186/s12874-018-0611-x.

Article  PubMed  PubMed Central  Google Scholar 

Tricco AC, Lillie E, Zarin W, O’Brien KK, Colquhoun H, Levac D, et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467–73. https://doi.org/10.7326/M18-0850.

Article  PubMed  Google Scholar 

Aromataris Edoardo, Lockwood C, Porritt K, Pilla B, Jordan Z. JBI manual for evidence synthesis [Internet]. JBI; 2024 [cited 2024 Sep 18].

Jaarsma T, Strömberg A, Dunbar SB, Fitzsimons D, Lee C, Middleton S, et al. Self-care research: how to grow the evidence base? Int J Nurs Stud. 2020;105:103555. https://doi.org/10.1016/j.ijnurstu.2020.103555.

Article  PubMed  CAS  Google Scholar 

Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–88. https://doi.org/10.1177/1049732305276687.

Article  PubMed  Google Scholar 

Brunton G, Oliver S, Thomas J. Innovations in framework synthesis as a systematic review method. Res Synthesis Methods. 2020;11(3):316–30. https://doi.org/10.1002/jrsm.1399.

Article  Google Scholar 

Corbin JM, Strauss A. Unending work and care: managing chronic illness at home. Jossey-bass; 1988.

Griva K, Nandakumar M, Ng JH, Lam KFY, McBain H, Newman SP. Hemodialysis Self-management intervention randomized trial (HED-SMART): A practical Low-Intensity intervention to improve adherence and clinical markers in patients receiving Hemodialysis. Am J Kidney Dis. 2017;71(3):371–81. https://doi.org/10.1053/j.ajkd.2017.09.014.

Article  PubMed  Google Scholar 

Griva K, Lam KFY, Nandakumar M, Ng JH, McBain H, Newman SP. The effect of brief self-management intervention for Hemodialysis patients (HED-SMART) on trajectories of