Volume 40, June 2025, 100825Author links open overlay panel, , , , , , , , , Highlights•

It can be challenging for people with long COVID to find actionable self-management resources.

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Developed with input from clinicians and patients, MyGuide Long COVID curates a set of resources for site visitors.

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Within the first year, MyGuide Long COVID had 52,578 page views and 8570 new users.

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MyGuide Long COVID is an example of an online tool can be co-created with patient partners and engagement tracked using web analytics.

AbstractBackground

Long COVID is a relatively new condition for which patients are asked to employ self-management strategies to manage their symptoms. However, it can be challenging for individuals with long COVID to find reliable and actionable self-management resources. The objective of this project was to develop an online tool for individuals with long COVID that is patient-centered, accessible, and customizable to meet individual needs.

MethodsMyGuide Long COVID (www.longCOVIDguide.ca) was developed in British Columbia (BC), Canada, by a team that included long COVID clinicians and patient partners. Site visitors answer questions about their symptoms, and MyGuide generates a curated set of self-management resources tailored to their needs. Since its launch in August 2023, Google Analytics has been used to monitor website activity.Results

Within the first year, MyGuide had 52,578 total page views and 8570 new users. The most popular method to access MyGuide was by computer (56.3 % of users), and the most represented city was Vancouver, BC (23.5 % of users). The most popular topics were “Post Exertional Malaise” (1339 sessions) and “What is long COVID?” (1257 sessions).

Conclusions

An online tool to support chronic disease self-management can be successfully co-developed with patient partners and engagement tracked using web analytics.

Keywords

SARS-CoV-2

Long COVID

Post-acute sequalae of COVID-19

Post-COVID-19 condition

Digital health

Self-management

Chronic disease

© 2025 The Authors. Published by Elsevier B.V.