Ethical approval

All procedures performed in the studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards.

Informed consent

Informed consent was obtained from all individual participants included in the study.

Conflict of interest

Grzegorz Rosiak: honoraria for speaking at educational events for Biogen Jakub Franke: no conflict of interest Krzysztof Milczarek: no conflict of interest Dariusz Konecki: no conflict of interest Anna Frączek-Kozlovska: speaking at educational events for Biogen and Roche, subinvestigator of SMA ROCHE study Anna Potulska-Chromik: honoraria for speaking at educational events for Biogen, Abbvie, Sanofi, PTC and Roche, support for congress participation: Biogen, PTC; institutional grant support from Kedrion, PI in Merz study. Anna Kostera-Pruszczyk: honoraria for advisory boards, speaking at educational events for Biogen, Novartis/AveXis, PTC and Roche, support for congress participation: Biogen, Roche, Novartis; institutional grant support from Biogen, Principal Investigator for SMA ROCHE studies Anna Łusakowska: honoraria for speaking at educational events for Biogen and Roche, support for congress participation: Biogen, Roche; institutional grant support from Biogen, subinvestigator for SMA ROCHE studies.