Transition is the planned and purposeful movement of patients from paediatric to adult care.1 Over the last five decades there have been many advances in cystic fibrosis (CF) treatment. Deaths within the paediatric population are now rare with only six reported in the UK in 2021 (total population n=10 908).2 Therefore, the majority of those affected are expected to transition to adult care, thus there is a need for CF teams to have robust transition processes.
A survey was disseminated to CF teams at international CF conferences over an 18-month period. To establish a consensus, we sought information regarding key aspects of transition. Participants included nurses, physiotherapists, dietitians, psychologists, social workers and doctors specialising in paediatric/adult CF. There were multiple answers to each question. Responses n=34/40, representing multidisciplinary teams (MDT) from 16 countries (Northern, Eastern …
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