Hopwood P, MacEachen E, McAiney C, Tong C. Personal support work and home care in Ontario during the COVID-19 pandemic. Healthc Policy Polit Santé. 2022;18:61–75.

Google Scholar 

Sinn C-LJ, Sultan H, Turcotte LA, McArthur C, Hirdes JP. Patterns of home care assessment and service provision before and during the COVID-19 pandemic in Ontario, Canada. PLOS ONE. 2022;17:e0266160.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Hapsari AP, Ho JW, Meaney C, Avery L, Hassen N, Jetha A, et al. The working conditions for personal support workers in the Greater Toronto Area during the COVID-19 pandemic: a mixed-methods study. Can J Public Health. 2022;113:817–33.

Article  PubMed  PubMed Central  Google Scholar 

Biering-Sørensen F, DeVivo MJ, Charlifue S, Chen Y, New PW, Noonan V, et al. International Spinal Cord Injury Core Data Set (version 2.0)—including standardization of reporting. Spinal Cord. 2017;55:759–64.

Article  PubMed  Google Scholar 

New PW, Marshall R. International Spinal Cord Injury Data Sets for non-traumatic spinal cord injury. Spinal Cord. 2014;52:123–32.

Article  CAS  PubMed  Google Scholar 

Kirshblum SC, Burns SP, Biering-Sorensen F, Donovan W, Graves DE, Jha A, et al. International standards for neurological classification of spinal cord injury (Revised 2011). J Spinal Cord Med. 2011;34:535–46.

Article  PubMed  PubMed Central  Google Scholar 

Draganich C, Philippus A, Eagye KJ, Mikolajczyk B, Morse LR, Monden KR. Changes in essential care in individuals with spinal cord injury during the COVID-19 pandemic. Spinal Cord. 2023;61:76–82.

Article  PubMed  Google Scholar 

Huang J, Pacheco Barzallo D, Rubinelli S, Münzel N, Brach M, Gemperli A. Professional home care and the objective care burden for family caregivers of persons with spinal cord injury: Cross sectional survey. Int J Nurs Stud Adv. 2021;3:100014.

Article  PubMed  Google Scholar 

Chan BC-F, Cronin S, Jaglal SB, Craven BC. Publicly funded home care service use in the first 2 years after spinal cord injury in Ontario, Canada. Home Health Care Serv Q. 2020;39:95–106.

Article  PubMed  Google Scholar 

Huang J, Pacheco Barzallo D, Rubinelli S, Münzel N, Brach M, Gemperli A. What influences the use of professional home care for individuals with spinal cord injury? A cross-sectional study on family caregivers. Spinal Cord. 2019;57:924–32.

Article  PubMed  PubMed Central  Google Scholar 

Jones A, Maclagan LC, Schumacher C, Wang X, Jaakkimainen RL, Guan J, et al. Impact of the COVID-19 pandemic on home care services among community-dwelling adults with dementia. J Am Med Dir Assoc. 2021;22:2258–62.

Article  PubMed  PubMed Central  Google Scholar 

Hill EJR, L’Hotta AJ, Kennedy CR, James AS, Fox IK. Living with cervical spinal cord injury during the COVID-19 pandemic: A qualitative study. Arch Rehabil Res Clin Transl. 2022;4:100208.

PubMed  PubMed Central  Google Scholar 

Smith EM, Boucher N, Miller WC. Caregiving services in spinal cord injury: A systematic review of the literature. Spinal Cord. 2016;54:562–9.

Article  CAS  PubMed  Google Scholar 

Dryden DM, Saunders LD, Rowe BH, May LA, Yiannakoulias N, Svenson LW, et al. Utilization of health services following spinal cord injury: a 6-year follow-up study. Spinal Cord. 2004;42:513–25.

Article  CAS  PubMed  Google Scholar 

Senthinathan A, Cimino S, Jaglal SB, Craven BC, Tu K, Guilcher S. The impact of the COVID-19 virus and pandemic on healthcare utilization, access, delivery, experiences, and outcomes in the spinal cord injuries/dysfunction population: A scoping review study. PLOS ONE. 2024;19:e0297384.

Article  CAS  PubMed  PubMed Central  Google Scholar 

Senthinathan A, Tadrous M, Hussain S, Craven BC, Jaglal SB, Moineddin R, et al. Examining the impact of COVID-19 on health care utilization among persons with chronic spinal cord injury/dysfunction: a population study. Spinal Cord. 2023. https://doi.org/10.1038/s41393-023-00930-1.

Article  PubMed  Google Scholar 

Matsuoka M, Sumida M. The effect of the COVID-19 pandemic on the health-related quality of life in home-based patients with spinal cord injuries in Japan. J Spinal Cord Med. 2022;45:760–4.

Article  PubMed  Google Scholar 

Rohn EJ, Hearn JH, Philippus AM, Monden KR. “It’s been a double-edged sword”: An online qualitative exploration of the impact of COVID-19 on individuals with spinal cord injury in the US with comparisons to previous UK findings. J Spinal Cord Med 2024;47:51–63.

Vives Alvarado JR, Miranda-Cantellops N, Jackson SN, Felix ER. Access limitations and level of psychological distress during the COVID-19 pandemic in a geographically-limited sample of individuals with spinal cord injury. J Spinal Cord Med. 2022;45:700–9.

Article  PubMed  Google Scholar 

Cameron-Blake E, Breton C, Sim P, Tatlow H, Hale T, Wood A, et al. Variation in the Canadian Provincial and Territorial responses to COVID19. Blavatnik Sch Gov Work Pap. 2021. https://doi.org/10.1038/s41562-021-01079-8.

Article  Google Scholar 

North American Observatory on Health Systems and Policies. (2020). North American COVID-19 Policy Response Monitor: Ontario. Toronto, Canada: North American Observatory on Health Systems and Policies.

Hearn JH, Rohn EJ, Monden KR. Isolated and anxious: A qualitative exploration of the impact of the COVID-19 pandemic on individuals living with spinal cord injury in the UK. J Spinal Cord Med. 2022;45:691–9.

Article  PubMed  Google Scholar 

Bhattarai M, Limbu S, Sherpa PD. Living with spinal cord injury during COVID-19: a qualitative study of impacts of the pandemic in Nepal. Spinal Cord. 2022;60:984–9.

Article  PubMed  PubMed Central  Google Scholar 

Hatefi M, Borji M, Jamshidbeigi Y. Challenges of Patients with Spinal Cord Injury During the COVID-19 Pandemic: A Qualitative Study. Arch Neurosci. 2021; 8. https://doi.org/10.5812/ans.118744.

Lakhani A, Dema S, Hose J, Erdem N, Wollersheim D, Grimbeek P, et al. What happens post-lockdown for people with disability? Autonomy, quality of life, service access and health changes for people with spinal cord injury in Victoria, Australia after COVID-19 social distancing restrictions. Health Soc Care Community. 2022;30:e5366–77.

Article  PubMed  Google Scholar 

Faleiros F, Alves D, Schoeller SD, Machado WCA, Corbo L, Zuchetto M. What will the post-pandemic world be like? A qualitative study on the perceptions of Brazilians with spinal cord injury. Middle East J Rehabil Health Stud. 2022; 9. https://doi.org/10.5812/mejrh.113705.

Monden KR, Andrews E, Pilarski C, Hearn J, Wudlick R, Morse LR. COVID-19 and the spinal cord injury community: Concerns about medical rationing and social isolation. Rehabil Psychol. 2021;66:373–9.

Article  PubMed  Google Scholar 

Righi G, Baroni E, Righi L, Belloni L, Del Popolo G. Perception of the COVID-19 pandemic among people with spinal cord injury: an Italian survey. Spinal Cord Ser Cases. 2022;8:2.

Article  PubMed  PubMed Central  Google Scholar 

Sharma Y, Whiting A, Dutta T. A survey of the challenges faced by individuals with disabilities and unpaid caregivers during the COVID-19 pandemic. Int J Environ Res Public Health. 2022;19:10075.

Article  PubMed  PubMed Central  Google Scholar 

Dicks MA, Clements ND, Gibbons CR, Verduzco-Gutierrez M, Trbovich M. Atypical presentation of Covid-19 in persons with spinal cord injury. Spinal Cord Ser Cases. 2020;6:38.

Article  PubMed  PubMed Central  Google Scholar 

Gustafson K, Stillman M, Capron M, O’Connell C, Longoni Di Giusto M, Tyagi N, et al. COVID-19 and spinal cord injury and disease: results of an international survey as the pandemic progresses. Spinal Cord Ser Cases. 2021;7:13.

Article  PubMed  PubMed Central  Google Scholar 

Bronskill SE, Carter MW, Costa AP, Esensoy AV, Gill SS, Gruneir A, et al. Aging in Ontario: An ICES Chartbook of Health Service Use by Older Adults – Technical Report. Toronto: Institute for Clinical Evaluative Sciences; 2010.

Fattah J, Ezzine L, Aman Z, El Moussami H, Lachhab A. Forecasting of demand using ARIMA model. Int J Eng Bus Manag; 2018;10:1–9.

Holroyd-Leduc JM, Laupacis A. Continuing care and COVID-19: a Canadian tragedy that must not be allowed to happen again. Can Med Assoc J. 2020;192:E632–3.

Article  Google Scholar 

King EC, Zagrodney KA, Rabeenthira P, Van Belle TA, McKay SM. Why did home care personal support service volumes drop during the COVID-19 pandemic? The contributions of client choice and personal support worker availability. Health Serv Insights. 2023;16:11786329231210692.

Article  PubMed  PubMed Central  Google Scholar