Weiss M, Holzer MT, Muehlensiepen F, et al. Healthcare utilization and unmet needs of patients with antisynthetase syndrome: an international patient survey. Rheumatol Int. 2023; https://doi.org/10.1007/s00296-023-05372-9
Masanneck L, Räuber S, Schroeter CB, et al. Driving time-based identification of gaps in specialised care coverage: an example of neuroinflammatory diseases in Germany. Digit Health. 2023;9:20552076231152988. https://doi.org/10.1177/20552076231152989
Saud A, Naveen R, Aggarwal R, Gupta L. COVID-19 and Myositis: What We Know So Far. Curr Rheumatol Rep. 2021;23:63. https://doi.org/10.1007/s11926-021-01023-9
Article CAS PubMed PubMed Central Google Scholar
Kernder A, Morf H, Klemm P, et al. Digital rheumatology in the era of COVID-19: results of a national patient and physician survey. RMD Open. 2021;7:e001548. https://doi.org/10.1136/rmdopen-2020-001548
•• de Thurah A, Bosch P, Marques A, et al. 2022 EULAR points to consider for remote care in rheumatic and musculoskeletal diseases. Ann Rheum Dis annrheumdis. 2022;2022:222341. Current EULAR guidelines to guide clinical care. https://doi.org/10.1136/annrheumdis-2022-222341
Gupta L, Najm A, Kabir K, De Cock D. Digital health in musculoskeletal care: where are we heading? BMC Musculoskelet Disord. 2023;24:192. https://doi.org/10.1186/s12891-023-06309-w.
Article PubMed PubMed Central Google Scholar
Knitza J, Muehlensiepen F, Ignatyev Y, et al. Patient’s perception of digital symptom assessment technologies in rheumatology: results from a multicentre study. Frontiers. Public Health. 2022;10
Gräf M, Knitza J, Leipe J, et al. Comparison of physician and artificial intelligence-based symptom checker diagnostic accuracy. Rheumatol Int. 2022; https://doi.org/10.1007/s00296-022-05202-4
Knitza J, Mohn J, Bergmann C, et al. Accuracy, patient-perceived usability, and acceptance of two symptom checkers (Ada and Rheport) in rheumatology: interim results from a randomized controlled crossover trial. Arthritis Res Ther. 2021;23:112. https://doi.org/10.1186/s13075-021-02498-8
Article CAS PubMed PubMed Central Google Scholar
Hannah L, von Sophie R, Gabriella RM, et al. Stepwise asynchronous telehealth assessment of patients with suspected axial spondyloarthritis: results from a pilot study. Rheumatol Int. 2023; https://doi.org/10.1007/s00296-023-05360-z
Zarbl J, Eimer E, Gigg C, et al. Remote self-collection of capillary blood using upper arm devices for autoantibody analysis in patients with immune-mediated inflammatory rheumatic diseases. RMD Open. 2022;8:e002641. https://doi.org/10.1136/rmdopen-2022-002641
Article PubMed PubMed Central Google Scholar
Muehlensiepen F, May S, Zarbl J, et al. At-home blood self-sampling in rheumatology: a qualitative study with patients and health care professionals. BMC Health Serv Res. 2022;22:1470. https://doi.org/10.1186/s12913-022-08787-5
Article PubMed PubMed Central Google Scholar
Xue Y, Zhang J, Li C, et al. Machine learning for screening and predicting the risk of anti-MDA5 antibody in juvenile dermatomyositis children. Front Immunol. 2022;13:940802. https://doi.org/10.3389/fimmu.2022.940802
Article CAS PubMed Google Scholar
Chock EY, Putman M, Conway R, et al. Experience with telemedicine among rheumatology clinicians during the COVID-19 pandemic: an international survey. Rheumatol Adv Pract. 2022;6:rkac039. https://doi.org/10.1093/rap/rkac039
Article PubMed PubMed Central Google Scholar
Muehlensiepen F, Knitza J, Marquardt W, et al. Acceptance of telerheumatology by rheumatologists and general practitioners in Germany: nationwide cross-sectional survey study. J Med Internet Res. 2021;23:e23742. https://doi.org/10.2196/23742
Article PubMed PubMed Central Google Scholar
Muehlensiepen F, Petit P, Knitza J, et al. Factors associated with telemedicine use among patients with rheumatic and musculoskeletal disease: secondary analysis of data from a German nationwide survey. J Med Internet Res. 2023;25:e40912. https://doi.org/10.2196/40912
Article PubMed PubMed Central Google Scholar
• Cavagna L, Zanframundo G, Codullo V, et al. Telemedicine in rheumatology: a reliable approach beyond the pandemic. Rheumatology (Oxford). 2021;60:366–70. Shared experiences of IIM teleconsultations. https://doi.org/10.1093/rheumatology/keaa554
Vossen D, Knitza J, Klemm P, et al. Acceptance of video consultation among patients with inflammatory rheumatic diseases depends on gender and location-results of an online survey among patients and physicians. Z Rheumatol. 2021; https://doi.org/10.1007/s00393-021-01052-w
Knitza J, Simon D, Lambrecht A, et al. Mobile health usage, preferences, barriers, and ehealth literacy in rheumatology: patient survey study. JMIR Mhealth Uhealth. 2020;8:e19661. https://doi.org/10.2196/19661
Article PubMed PubMed Central Google Scholar
• Naveen R, Sundaram TG, Agarwal V, Gupta L. Teleconsultation experience with the idiopathic inflammatory myopathies: a prospective observational cohort study during the COVID-19 pandemic. Rheumatol Int. 2021;41:67–76. Shared experiences of IIM teleconsultations. https://doi.org/10.1007/s00296-020-04737-8.
Article CAS PubMed Google Scholar
Aggarwal R, Rider LG, Ruperto N, et al. 2016 American College of Rheumatology/European League Against Rheumatism criteria for minimal, moderate, and major clinical response in adult dermatomyositis and polymyositis: an International Myositis Assessment and Clinical Studies Group/Paediatric Rheumatology International Trials Organisation Collaborative Initiative. Ann Rheum Dis. 2017;76:792–801. https://doi.org/10.1136/annrheumdis-2017-211400
Gregory WJ, Saygin D. Assessment of physical activity and muscle function in adult inflammatory myopathies. Curr Rheumatol Rep. 2022;24:54–63. https://doi.org/10.1007/s11926-022-01059-5
Ernste FC, Chong C, Crowson CS, et al. Functional index-3: a valid and reliable functional outcome assessment measure in patients with dermatomyositis and polymyositis. J Rheumatol. 2021;48:94–100. https://doi.org/10.3899/jrheum.191374
• Naveen R, Thakare DR, Agarwal V, et al. Validation of two simple patient-centered outcome measures for virtual monitoring of patients with idiopathic inflammatory myositis. Clin Rheumatol. 2022;41:765–72. First validation study of remote functional outcome tests. https://doi.org/10.1007/s10067-021-05990-3
Article CAS PubMed Google Scholar
Rockette-Wagner B, Saygin D, Moghadam-Kia S, et al. Reliability, validity and responsiveness of physical activity monitors in patients with inflammatory myopathy. Rheumatology (Oxford). 2021;60:5713–23. https://doi.org/10.1093/rheumatology/keab236
•• Saygin D, Rockette-Wagner B, Oddis C, et al. Consumer-based activity trackers in evaluation of physical activity in myositis patients. Rheumatology (Oxford). 2021:keab700. Validation study highlighting the value of activity trackers. https://doi.org/10.1093/rheumatology/keab700
Milazzo M, Spezzaneve A, Astrea G, et al. AUTOMA: a wearable device to assess the upper limb muscular activity in patients with neuromuscular disorders. Acta Myol. 2021;40:143–51. https://doi.org/10.36185/2532-1900-057
Article PubMed PubMed Central Google Scholar
de Jesus MO, Ostolin TLVDP, Proença NL, et al. Self-administered six-minute walk test using a free smartphone app in asymptomatic adults: reliability and reproducibility. Int J Environ Res Public Health. 2022;19:1118. https://doi.org/10.3390/ijerph19031118
Article PubMed PubMed Central Google Scholar
Oldroyd AGS, Krogh NS, Dixon WG, Chinoy H. Investigating characteristics of idiopathic inflammatory myopathy flares using daily symptom data collected via a smartphone app. Rheumatology (Oxford). 2022;61:4845–54. https://doi.org/10.1093/rheumatology/keac161
Yoshida A, Kim M, Kuwana M, et al. Impaired physical function in patients with idiopathic inflammatory myopathies: results from the multicentre COVAD patient-reported e-survey. Rheumatology (Oxford). 2022:keac441. https://doi.org/10.1093/rheumatology/keac441
Shinjo SK, Kim M, Hoff LS, et al. Pain in individuals with idiopathic inflammatory myopathies, other systemic autoimmune rheumatic diseases, and without rheumatic diseases: A report from the COVAD study. Int J Rheum Dis. 2023;26:727–39. https://doi.org/10.1111/1756-185X.14636
Article CAS PubMed Google Scholar
Taubmann J, Knitza J, Müller F, et al. Rescue therapy of antisynthetase syndrome with CD19-targeted CAR-T-cells after failure of several B cell depleting antibodies. Rheumatology (Oxford). 2023:kead330. https://doi.org/10.1093/rheumatology/kead330
Müller F, Boeltz S, Knitza J, et al. CD19-targeted CAR T cells in refractory antisynthetase syndrome. Lancet. 2023;401:815–8. https://doi.org/10.1016/S0140-6736(23)00023-5
Nakajima T, Sankai Y, Takata S, et al. Cybernic treatment with wearable cyborg Hybrid Assistive Limb (HAL) improves ambulatory function in patients with slowly progressive rare neuromuscular diseases: a multicentre, randomised, controlled crossover trial for efficacy and safety (NCY-3001). Orphanet J Rare Dis. 2021;16:304. https://doi.org/10.1186/s13023-021-01928-9
Article PubMed PubMed Central Google Scholar
Just IA, Fries D, Loewe S, et al. Movement therapy in lung transplantation candidates assisted by a lightweight wearable robot. Assist Technol. 2023;35:242–7. https://doi.org/10.1080/10400435.2022.2067914
Krusche M, Burmester GR, Knitza J. Digital crowdsourcing: unleashing its power in rheumatology. Ann Rheum Dis. 2020;79:1139–40. https://doi.org/10.1136/annrheumdis-2020-217697
Article CAS PubMed Google Scholar
Joshi M, Naveen R, Jagtap K, et al. Assessment of quality and reliability of YouTube videos for patient and physician education on inflammatory myositis. Clin Rheumatol. 2023;42:1339–49. https://doi.org/10.1007/s10067-023-06522-x
Article PubMed PubMed Central Google Scholar
Fedkov D, Berghofen A, Weiss C, et al. Efficacy and safety of a mobile app intervention in patients with inflammatory arthritis: a prospective pilot study. Rheumatol Int. 2022;42:2177–90. https://doi.org/10.1007/s00296-022-05175-4
Article PubMed PubMed Central Google Scholar
Fazal ZZ, Sen P, Joshi M, et al. COVAD survey 2 long-term outcomes: unmet need and protocol. Rheumatol Int. 2022;42:2151–8. https://doi.org/10.1007/s00296-022-05157-6.
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