American Cancer Society’s report on the status of cancer disparities in the United States, 2021.
CA Cancer J Clin. 72: 112-143SEER Cancer Statistics Review, 1975-2017. National Cancer Institute SEER.
() ()Cancer Disparities in the Black Community. Am Cancer Soc.
() ()Duma N. Vera Aguilera J. Paludo J. et al.Representation of minorities and women in oncology clinical trials: review of the past 14 years.
J Oncol Pract. 14: e1-e10Bureau. National Population by Characteristics: 2010-2019. United States Census Bureau.
() ()2019 Drug Trials Snapshots Summary Report. US Food & Drug Administration, Available at: https://www.fda.gov/drugs/drug-approvals-and-databases/drug-trials-snapshots Accessed April 18, 2022.
U.S. Census Bureau QuickFacts: United States. United States Census Bureau.
() ()Knepper TC, McLeod HL. When will clinical trials finally reflect diversity? Nature, 557(7704), 2018, 157-159.
Unger J.M. Hershman D.L. Osarogiagbon R.U. et al.Representativeness of Black patients in cancer clinical trials sponsored by the National Cancer Institute compared with pharmaceutical companies.
JNCI Cancer Spectr. 4 ()Ramamoorthy A. Pacanowski M.A. Bull J. et al.Racial/ethnic differences in drug disposition and response: review of recently approved drugs.
Clin Pharmacol Ther. 97: 263-273Loree J.M. Anand S. Dasari A. et al.Disparity of race reporting and representation in clinical trials leading to cancer drug approvals from 2008 to 2018.
JAMA Oncol. 5: e191870Nazha B. Mishra M. Pentz R. et al.Enrollment of racial minorities in clinical trials: old problem assumes new urgency in the age of immunotherapy.
Am Soc Clin Oncol Educ Book. 39: 3-10Trant A.A. Walz L. Allen W. et al.Increasing accrual of minority patients in breast cancer clinical trials.
Breast Cancer Res Treat. 184: 499-505Amirikia K.C. Mills P. Bush J. et al.Higher population-based incidence rates of triple-negative breast cancer among young African-American women: implications for breast cancer screening recommendations.
Cancer. 117: 2747-2753Carey L.A. Perou C.M. Livasy C.A. et al.Race, breast cancer subtypes, and survival in the Carolina Breast Cancer Study.
JAMA. 295: 2492-2502Kohler B.A. Sherman R.L. Howlader N. et al.Annual Report to the Nation on the Status of Cancer, 1975-2011, Featuring Incidence of Breast Cancer Subtypes by Race/Ethnicity, Poverty, and State.
JNCI J Natl Cancer Inst. 107: djv048Triple-negative breast cancer: epidemiological considerations and recommendations.
Ann Oncol. 23: vi7-vi12Triple-negative breast cancer: epidemiology and management options.
Drugs. 70: 2247-2258Triple-negative breast cancer: an unmet medical need.
Oncologist. 16: 1-11https://doi.org/10.1634/theoncologist.2011-S1-01Schmid P. Cortes J. Dent R. et al.Event-free survival with pembrolizumab in early triple-negative breast cancer.
N Engl J Med. 386: 556-567Sparano J.A. Gray R.J. Makower D.F. et al.Adjuvant chemotherapy guided by a 21-gene expression assay in breast cancer.
N Engl J Med. 379: 111-121https://doi.org/10.1056/NEJMoa1804710Collin L.J. Yan M. Jiang R. et al.Oncotype DX recurrence score implications for disparities in chemotherapy and breast cancer mortality in Georgia.
NPJ Breast Cancer. 5: 32Meyer S. Woldu H.G. Sheets L.R.Sociodemographic diversity in cancer clinical trials: New findings on the effect of race and ethnicity.
Contemp Clin Trials Commun. 21: 100718Abbas A. Diaz A. Obeng-Gyasi S. et al.Disparity in clinical trial participation among patients with gastrointestinal cancer.
J Am Coll Surg. 234: 589-598Demographic and socioeconomic disparities among cancer survivors in clinical trials participation, USA, 2016–2018.
J Cancer Educ. 37: 80-90Unger J.M. Vaidya R. Hershman D.L. et al.Systematic review and meta-analysis of the magnitude of structural, clinical, and physician and patient barriers to cancer clinical trial participation.
JNCI J Natl Cancer Inst. 111: 245-255Grant S.R. Noticewala S.S. Mainwaring W. et al.Non-English language validation of patient-reported outcome measures in cancer clinical trials.
Support Care Cancer. 28: 2503-2505George S, Moran E, Duran N, et al., Using animation as an information tool to advance health research literacy among minority participants, AMIA Annu Symp Proc, 2013, 2013, 475-484.
Are good intentions good enough?: Informed consent without trained interpreters.
J Gen Intern Med. 22: 598-605anne Hughson J. Woodward-Kron R. Parker A. et al.A review of approaches to improve participation of culturally and linguistically diverse populations in clinical trials.
Trials. 17: 1-10Howerton M.W. Gibbons M.C. Baffi C.R. et al.Provider roles in the recruitment of underrepresented populations to cancer clinical trials.
Cancer Interdiscip Int J Am Cancer Soc. 109: 465-476Amorrortu R.P. Arevalo M. Vernon S.W. et al.Recruitment of racial and ethnic minorities to clinical trials conducted within specialty clinics: an intervention mapping approach.
Trials. 19: 115Clark L.T. Watkins L. Piña I.L. et al.Increasing diversity in clinical trials: overcoming critical barriers.
Curr Probl Cardiol. 44: 148-172Census - Social Characteristisc in the United States. United States Census Bureau.
() ()Glickman S.W. Ndubuizu A. Weinfurt K.P. et al.Perspective: the case for research justice: inclusion of patients with limited English proficiency in clinical research.
Acad Med. 86: 389-393Michael J. Aylen T. Ogrin R.Development of a Translation Standard to support the improvement of health literacy and provide consistent high-quality information.
Aust Health Rev. 37: 547-551Webb D.A. Coyne J.C. Goldenberg R.L. et al.Recruitment and retention of women in a large randomized control trial to reduce repeat preterm births: the Philadelphia Collaborative Preterm Prevention Project.
BMC Med Res Methodol. 10: 1-15Risk factors: age - national cancer Institute. National Cancer Institute, () ()Hurria A. Togawa K. Mohile S.G. et al.Predicting chemotherapy toxicity in older adults with cancer: a prospective multicenter study.
J Clin Oncol. 29: 3457-3465Palaia I. Loprete E. Musella A. et al.Chemotherapy in elderly patients with gynecological cancer.
Oncology. 85: 168-172Javid S.H. Unger J.M. Gralow J.R. et al.A prospective analysis of the influence of older age on physician and patient decision-making when considering enrollment in breast cancer clinical trials (SWOG S0316).
Oncologist. 17: 1180-1190Kemeny M.M. Peterson B.L. Kornblith A.B. et al.Barriers to clinical trial participation by older women with breast cancer.
J Clin Oncol. 21: 2268-2275Grasso C. McDowell M.J. Goldhammer H. et al.Planning and implementing sexual orientation and gender identity data collection in electronic health records.
J Am Med Inform Assoc. 26: 66-70Heck N.C. Mirabito L.A. LeMaire K. et al.Omitted data in randomized controlled trials for anxiety and depression: A systematic review of the inclusion of sexual orientation and gender identity.
J Consult Clin Psychol. 85: 72Lunn M.R. Capriotti M.R. Flentje A. et al.Using mobile technology to engage sexual and gender minorities in clinical research.
PLoS One. 14: e0216282Kim E.S. Bruinooge S.S. Roberts S. et al.Broadening eligibility criteria to make clinical trials more representative: American Society of Clinical Oncology and Friends of Cancer Research Joint Research Statement.
J Clin Oncol. 35: 3737Unger J.M. Hershman D.L. Till C. et al.“When offered to participate”: a systematic review and meta-analysis of patient agreement to participate in cancer clinical trials.
JNCI J Natl Cancer Inst. 113: 244-257Sood A, Prasad K, Chhatwani L, et al. Patients’ attitudes and preferences about participation and recruitment strategies in clinical trials, Mayo Clinic Proc, 2009;84(3):243–247.
Moreno-John G. Gachie A. Fleming C.M. et al.Ethnic minority older adults participating in clinical research.
J Aging Health. 16: 93S-123SCurry L, Jackson J. Recruitment and retention of diverse ethnic and racial groups in health research: An evolving science. In: Curry L, Jackson J, editors. The science of inclusion: Recruiting and retaining racial and ethnic elders in health research. Washington, DC: Gerontological Society of America; 2003. pp. 1–7
Recruitment and retention of minority elders in health-related research: A community-based approach.
Sci Incl Recruit Retaining Racial Ethn Elders Health Res Wash DC Gerontol Soc Am. 82: 82-89McDougall Jr., G.J. Simpson G. Friend M.L.Strategies for research recruitment and retention of older adults of racial and ethnic minorities.
J Gerontol Nurs. 41: 14-23Kamran S.C. Niemierko A. Deville C. et al.Diversity Trends by Sex and Underrepresented in Medicine Status Among US Radiation and Medical Oncology Faculty Over 5 Decades.
JAMA Oncol. 8: 221-229Yu A.Y.L. Iwai Y. Thomas S.M. et al.Diversity among surgical faculty, residents, and oncology fellows from 2011/2012 to 2019/2020.
Ann Surg Oncol. 29: 2763-2765Price E.G. Gozu A. Kern D.E. et al.The role of cultural diversity climate in recruitment, promotion, and retention of faculty in academic medicine.
J Gen Intern Med. 20: 565-571West M.A. Hwang S. Maier R.V. et al.Ensuring equity, diversity, and inclusion in academic surgery: an American Surgical Association white paper.
Ann Surg. 268: 403-407Rodríguez J.E. Campbell K.M. Mouratidis R.W.Where are the rest of us? Improving representation of minority faculty in academic medicine.
South Med J. 107: 739-744Muquith M. Pham T. Espinoza M. et al.Representation of investigators by gender among authors of phase 3 oncology trials worldwide.
JAMA Netw Open. 5: e220031Ludmir E.B. Mainwaring W. Miller A.B. et al.Women’s representation among lead investigators of clinical trials in oncology.
JAMA Oncol. 5: 1501-1502Saha S. Komaromy M. Koepsell T.D. et al.Patient-physician racial concordance and the perceived quality and use of health care.
Arch Intern Med. 159: 997-1004Shen M.J. Peterson E.B. Costas-Muñiz R. et al.The effects of race and racial concordance on patient-physician communication: a systematic review of the literature.
J Racial Ethn Health Disparities. 5: 117-140Laveist T.A. Nuru-Jeter A.Is doctor-patient race concordance associated with greater satisfaction with care?.
J Health Soc Behav. 43: 296-306Corbie-Smith G. Thomas S.B. Williams M.V. et al.Attitudes and beliefs of African Americans toward participation in medical research.
J Gen Intern Med. 14: 537-546Corbie-Smith G. Thomas S.B. St George D.M.M.Distrust, race, and research.
Arch Intern Med. 162: 2458-2463Branson R.D. Davis K. Butler K.L.African Americans’ participation in clinical research: importance, barriers, and solutions.
Am J Surg. 193 (): 32-39https://doi.org/10.1016/j.amjsurg.2005.11.007
Comments (0)