CONFERENCE DETAILS

Australian and New Zealand Scientific Meeting in Polycystic Kidney Disease (ANZ-PKD Meeting), Novotel Parramatta & Westmead Institute for Medical Research, Sydney, Australia, 11th-12th October, 2019.

STEERING COMMITTEE

Dr. Annette Wong, Co-Chair

Dr. Gopi Rangan, Co-Chair

Ms. Alexandra Munt

A/Prof. Andrew Mallett

A/Prof. Vincent Lee

Dr. Jennifer Li

INVITED SPEAKERS

Dr. Alexios Adamides

Dr. Lindsay Fowles

Prof. Carmel Hawley

Dr. Maria Irazabal

Dr. Jan Liebelt

Dr. Sebastian Lunke

Prof. Geoff McCaughan

Prof. Stephen McDonald

A/Prof. Vishal Patel

Dr. Michel Tchan

Prof. Alan Yu

PKD Australia and Consumer Representatives Mr Ian Cornell Mrs Judi Cornell Mr David Croker Senator Malarndirri McCarthy The clinical management of autosomal dominant polycystic kidney (ADPKD) has entered a new era due to advances in therapeutics and diagnostics. This special issue summarises the inaugural Australian and New Zealand Scientific Meeting in Polycystic Kidney Disease (ANZ-PKD Meeting) which took place at the Novotel Parramatta (7 to 10 pm, 11th October 2019) and the Westmead Institute for Medical Research (WIMR), Sydney, Australia (8 am to 4 pm, 12th October 2019). The aim of this scientific meeting was to provide a practical update on the clinical management and science of PKD to enable clinicians and scientists in Australia and New Zealand to deliver best care and research to people with PKD. The specific learning outcomes were: Identify the key principles of genetic care in the two forms of PKD [ADPKD and autosomal recessive (AR)PKD]. Provide details on individualising the medical management of PKD. Describe current progress and challenges in clinical research and disease-registries in PKD. The ANZ-PKD Steering Committee invited twelve experts to speak on their respective expertise in a face-face forum and the meeting was attended by 60 registrants. Three international speakers (Dr Maria Irazabal, Prof. Alan Yu and A/Prof. Vishal Patel) commenced the meeting on Friday 11th October, 2019 at a face-face dinner before completing their additional talks on Saturday 12th October at WIMR in addition to the remaining nine speakers and their talks. The additional speakers comprised of Australian clinical experts in genetics and PKD (including clinical nephrologists, geneticists, genetic counsellors, a neurosurgeon, and hepatologist) together with representatives of the PKD Australia and patients and families with ADPKD. Furthermore, all presentations were recorded and provided to the Australian and New Zealand Society of Nephrology (ANZSN) for professional development purposes.

The conference opened with Dr. Maria Irazabal's talk: TKV or eGFR – which one is better? This was followed by a presentation by Prof. Alan Yu (Personalising treatment for patients with ADPKD: How, What and When). To close out Friday evening, A/Prof. Vishal Patel discussed the readiness of gene therapy for ADPKD. The meeting also featured a ‘crash course’ in clinical management and presentations of consumer/patient perspectives as well as workshop on the development of a disease-specific registry. The broad informal aims were to discuss clinical controversies, provide discussion on clinical management, stimulate research directions. The meeting concluded on Saturday afternoon with a lecture and workshop discussion conducted by Prof. Stephen McDonald and the Steering Committee.

Participants of the meeting completed a feedback survey which asked for demographic information as well as ratings of the educational content of the symposium, knowledge before and after attending (and particular areas of practice this relates to e.g. genetic testing, treatments etc) and suggestions for future topics and speakers.