1. World Health Organization . Rehabilitation, https://www.who.int/news-room/fact-sheets/detail/rehabilitation (2020, accessed 12 May 2021).
Google Scholar2. Wade, DT . What is rehabilitation? An empirical investigation leading to an evidence-based description. Clin Rehabil 2020; 34: 571–583.
Google Scholar | SAGE Journals | ISI3. Hoque, DME, Kumari, V, Hoque, M, et al. Impact of clinical registries on quality of patient care and clinical outcomes: a systematic review. PLoS One 2017; 12: e0183667–e0183667.
Google Scholar | Crossref | Medline4. Svensson-Ranallo, PA, Adam, TJ, Sainfort, F. A framework and standardized methodology for developing minimum clinical datasets. AMIA Jt Summits Transl Sci Proc 2011; 2011: 54–58.
Google Scholar | Medline5. Clarke, M . Standardising outcomes for clinical trials and systematic reviews. Trials 2007; 8: 1–3.
Google Scholar | Crossref | Medline6. World Health Organization . Rehabilitation 2030: A call for action. https://www.who.int/publications/m/item/rehabilitation-2030-a-call-for-action. (2017, accessed 12 May 2021).
Google Scholar7. Bachmann, S, Finger, C, Huss, A, et al. Inpatient rehabilitation specifically designed for geriatric patients: systematic review and meta-analysis of randomised controlled trials. Br Med J 2010; 340: c1718–c3484.
Google Scholar | Crossref | Medline8. Agency for Clinical Innovation . Rehabilitation for chronic conditions framework. https://aci.health.nsw.gov.au/resources/chronic-care/rehabilitation-for-chronic-conditions-framework. (2017, accessed 12 May 2021)
Google Scholar9. Tricco, AC, Lillie, E, Zarin, W, et al. PRISMA Extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med 2018; 169: 467–473.
Google Scholar | Crossref | Medline10. COMET Initiative . Core Outcome Measures in Effectiveness Trials, http://www.comet-initiative.org/.
Google Scholar11. Veritas Health Innovation . Covidence systematic review software. Australia: Melbourne, 2021.
Google Scholar12. Australian Commission on Safety and Quality in Health Care . Australian Register of Clinical Registries, https://www.safetyandquality.gov.au/australian-register-clinical-registries (2020, accessed 26/05 2021).
Google Scholar13. Green, JP, Gordon, R, Kobel, C, et al. AN-SNAP V4 user manual. 2014.
Google Scholar14. Salinas, MJ, Sprinkhuizen, GS, Ackerson, GT, et al. An international standard set of patient-centered outcome measures after stroke. Stroke 2016; 47: 180–186.
Google Scholar | Crossref | Medline15. Wallace, SJ, Worrall, L, Rose, T, et al. A core outcome set for aphasia treatment research: the ROMA consensus statement. Int J Stroke 2019; 14: 180–185.
Google Scholar | SAGE Journals | ISI16. Wallace, SJ, Worrall, L, Rose, T, et al. Core outcomes in aphasia treatment research: an e-delphi consensus study of international aphasia researchers. Am J Speech Lang Pathol 2016; 25: S729–S742.
Google Scholar | Crossref | Medline17. Wallace, SJ, Worrall, L, Rose, T, et al. Using the international classification of functioning, disability, and health to identify outcome domains for a core outcome set for aphasia: a comparison of stakeholder perspectives. Disabil Rehabil 2019; 41: 564–573.
Google Scholar | Crossref | Medline18. Wallace, SJ, Worrall, L, Rose, T, et al. Which outcomes are most important to people with aphasia and their families? An international nominal group technique study framed within the ICF. Disabil Rehabil 2017; 39: 1364–1379.
Google Scholar | Crossref | Medline19. Wallace, SJ, Worrall, L, Rose, T, et al. Which treatment outcomes are most important to aphasia clinicians and managers? An international e-Delphi consensus study. Aphasiology 2017; 31: 643–673.
Google Scholar | Crossref20. Rowe, FJ, Hepworth, LR, Kirkham, JJ. Development of core outcome sets for vision screening and assessment in stroke: a Delphi and consensus study. BMJ Open 2019; 9: e029578–e029578.
Google Scholar | Crossref | Medline21. Kwakkel, G, Lannin, NA, Borschmann, K, et al. Standardized measurement of sensorimotor recovery in stroke trials: consensus-based core recommendations from the stroke recovery and rehabilitation roundtable. Int J Stroke 2017; 12: 451–461.
Google Scholar | SAGE Journals | ISI22. Haywood, KL, Griffin, XL, Achten, J, et al. Developing a core outcome set for hip fracture trials. Bone Joint J 2014; 96: 1016–1023.
Google Scholar | Crossref | Medline23. Falder, S, Browne, A, Edgar, D, et al. Core outcomes for adult burn survivors: a clinical overview. Burns 2009; 35: 618–641.
Google Scholar | Crossref | Medline | ISI24. Klokkerud, M, Dagfinrud, H, Uhlig, T, et al. Developing and testing a consensus-based core set of outcome measures for rehabilitation in musculoskeletal diseases. Scand J Rheumatol 2018; 47: 225–234.
Google Scholar | Crossref | Medline25. Biering-Sorensen, F, DeVivo, MJ, Charlifue, S, et al. International spinal cord injury core data Set (version 2.0)-including standardization of reporting. Spinal Cord 2017; 55: 759–764.
Google Scholar | Crossref | Medline26. DeVivo, M, Biering-Sørensen, F, Charlifue, S, et al. International spinal cord injury core data Set. Spinal Cord 2006; 44: 535–540.
Google Scholar | Crossref | Medline | ISI27. Cadilhac, DA, Lannin, NA, Anderson, CS, et al. Protocol and pilot data for establishing the Australian stroke clinical registry. Int J Stroke 2010; 5: 217–226.
Google Scholar | SAGE Journals | ISI28. Domensino, A-F, Winkens, I, van Haastregt, JCM, et al. Defining the content of a minimal dataset for acquired brain injury using a delphi procedure. Health Qual Life Outcomes 2020; 18: 30–30.
Google Scholar | Crossref | Medline29. Lenti, G, Agosti, M, Massucci, M, et al. Developing a minimum data set for stroke patients assessment: the “protocollo di minima per l’Ictus”(PMIC) as a starting point towards an Italian stroke registry. Eur J Phys Rehabil Med 2008; 44: 263–269.
Google Scholar | Medline30. interRAI . interRAI, https://www.interrai.org/ (2021, accessed 26 May 2021).
Google Scholar31. Gray, LC, Berg, K, Fries, BE, et al. Sharing clinical information across care settings: the birth of an integrated assessment system. BMC Health Serv Res 2009; 9: 71–71.
Google Scholar | Crossref | Medline | ISI32. Australasian Rehabilitation Outcomes Centre . Australasian rehabilitation outcomes centre, https://www.uow.edu.au/ahsri/aroc/ (2021, accessed 26 May 2021).
Google Scholar33. Australian and New Zealand Hip Fracture Registry . Australian And New Zealand Hip fracture registry home page, https://anzhfr.org/ (2021, accessed 26 May 2021).
Google Scholar34. UK Rehabilitation Outcomes Collaborative . UK ROC - UK rehabilitation outcomes collaborative, http://www.ukroc.org/ (2021).
Google Scholar35. Australian Institute of Health and Welfare . Admitted patient care national minimum data set: national health data dictionary version 12, https://www.aihw.gov.au/reports/hospitals/admitted-patient-care-nmds/contents/table-of-contents (2021).
Google Scholar36. Canadian Institute for Health Information . About CIHI, https://www.cihi.ca/en/about-cihi (2021, accessed 26 May 2021).
Google Scholar37. Centers for medicare and medicaid services . IRF-PAI, https://www.cms.gov/Medicare/Medicare-Fee-for-Service-Payment/InpatientRehabFacPPS/IRFPAI (2019, accessed 26 May 2021).
Google Scholar38. Agency for Clinical Innovation . Brain injury rehabilitation minimum dataset data dictionary. 2019.
Google Scholar39. International Consortium for Health Outcomes Measurement . Healthcare Improvement, https://www.ichom.org/ (2021).
Google Scholar40. Salinas, J, Sprinkhuizen, SM, Ackerson, T, et al. An international standard set of patient-centered outcome measures after stroke. Stroke 2016; 47: 180–186.
Google Scholar | Crossref | Medline41. Noonan, VK, Kwon, BK, Soril, L, et al. The rick hansen spinal cord injury registry (RHSCIR): a national patient-registry. Spinal Cord 2012; 50: 22–27.
Google Scholar | Crossref | Medline | ISI42. Praxis Spinal Cord Institute . National SCI Registry (RHSCIR), https://praxisinstitute.org/research-care/key-initiatives/national-sci-registry/ (2021, accessed 26 May 2021).
Google Scholar43. Rehabilitative Care Alliance . Rehabilitative Care Alliance, http://rehabcarealliance.ca/ (2021, accessed 26 May 2021).
Google Scholar44. National Spinal Cord Injury Statistical Center . National Spinal Cord Injury Model Systems (SCIMS) Database, https://www.nscisc.uab.edu/public_pages/Database (2021, accessed 26 May 2021).
Google Scholar45. RIKSSTROKE The Swedish Stroke Register , https://www.riksstroke.org/eng/ (2021, accessed 26 May 2021).
Google Scholar46. Swedish National Registry for Hip Fractures . RIKSHÖFT.https://www.xn--rikshft-e1a.se (2021, accessed 26 May 2021).
Google Scholar47. Centers For Disease Control and Prevention . Division for Heart Disease and Stroke Prevention, https://www.cdc.gov/dhdsp/programs/stroke_registry.htm (2020, accessed 26 May 2021).
Google Scholar48. Wattigney, WA, Croft, JB, Mensah, GA, et al. Establishing data elements for the paul coverdell national acute stroke registry: part 1: proceedings of an expert panel. Stroke 2003; 34: 151–156.
Google Scholar | Crossref | Medline | ISI49. Dodd, S, Clarke, M, Becker, L, et al. A taxonomy has been developed for outcomes in medical research to help improve knowledge discovery. J Clin Epidemiol 2018; 96: 84–92.
Google Scholar | Crossref | Medline50. Kirkham, JJ, Davis, K, Altman, DG, et al. Core outcome Set-STAndards for development: the COS-STAD recommendations. PLoS Med 2017; 14: e1002447–e1002447.
Google Scholar | Crossref | Medline51. Moody-Williams, J . A journey towards patient-centered healthcare quality. Cham: Springer International Publishing AG, 2019.
Google Scholar52. Korner-Bitensky, N . When does stroke rehabilitation End? Int J Stroke 2013; 8: 8–10.
Google Scholar | SAGE Journals | ISI53. Hall, A . Quality of life and value assessment in health care. Health Care Anal 2020; 28: 45–61.
Google Scholar | Crossref | Medline54. Koh, GC-H, Chen, CH, Petrella, R, et al. Rehabilitation impact indices and their independent predictors: a systematic review. BMJ Open 2013; 3: e003483–e003483.
Google Scholar | Crossref | Medline | ISI55. Howe, T, Davidson, B, Worrall, L, et al. ‘You needed to rehab … families as well’: family members’ own goals for aphasia rehabilitation. Int J Lang Commun Disord 2012; 47: 511–521.
Google Scholar | Crossref | Medline | ISI