Social media in the infertile community—using a text analysis tool to identify the topics of discussion on the multitude of infertility blogs

1. Inhorn, MC, Patrizio, P. Infertility around the globe: new thinking on gender, reproductive technologies and global movements in the 21st century. Hum Reprod Update 2015; 21(4): 411–426.
Google Scholar | Crossref | Medline | ISI2. World Health Organization (WHO) . Multiple definitions of infertility, http://www.who.int/reproductivehealth/topics/infertility/multiple-definitions/en/ (accessed 27 June 2019).
Google Scholar3. Ombelet, W, Cooke, I, Dyer, S, et al. Infertility and the provision of infertility medical services in developing countries. Hum Reprod Update 2008; 14(6): 605–621.
Google Scholar | Crossref | Medline4. Time of Care . Ovulation disorders: World Health Organization (WHO) categorization, https://www.timeofcare.com/ovulation-disorders-world-health-organization-who-categorization/ (2017, accessed 19 September 2019).
Google Scholar5. The Royal Australian College of General Practitioners (RACGP) . Male infertility—the other side of the equation, https://www.racgp.org.au/afp/2017/september/male-infertility/ (accessed 18 November 2019).
Google Scholar6. Centers for Disease Control and Prevention (CDC) . Reproductive health: infertility FAQs, https://www.cdc.gov/reproductivehealth/infertility/index.htm#ART (accessed 24 September 2019).
Google Scholar7. Vårdguiden . Ofrivillig barnlöshet, https://www.1177.se/stockholm/barn—gravid/barnloshet/ofrivillig-barnloshet/ (accessed 24 September 2019).
Google Scholar8. Hinton, L, Kurinczuk, JJ, Ziebland, S. Infertility; isolation and the Internet: a qualitative interview study. Patient Educ Couns 2010; 81(3): 436–441.
Google Scholar | Crossref | Medline9. Chochovski, J, Moss, SA, Charman, DP. Recovery after unsuccessful in vitro fertilization: the complex role of resilience and marital relationships. J Psychosom Obstet Gynaecol 2013; 34(3): 122–128.
Google Scholar | Crossref | Medline10. Shani, C, Yelena, S, Reut, BK, et al. Suicidal risk among infertile women undergoing in-vitro fertilization: incidence and risk factors. Psychiatr Res 2016; 240: 53–59.
Google Scholar | Crossref | Medline11. Iordachescu, DA, Gica, C, Vladislav, EO, et al. Emotional disorders, marital adaptation and the moderating role of social support for couples under treatment for infertility. Ginekol Pol 2021; 92(2): 98–104.
Google Scholar | Crossref | Medline12. Iordăchescu, DA, Paica, CI, Boca, AE, et al. Anxiety, difficulties, and coping of infertile women. Healthcare 2021; 9: 466.
Google Scholar | Crossref13. Knoll, M, Bronstein, J. An examination of the information disclosure behavior of infertility bloggers. Aslib J Inform Manage 2014; 66(2): 175.
Google Scholar | Crossref14. Gumbrecht, M . Blogs are “protected space,” 2004, https://pdfs.semanticscholar.org/0176/93db2969b04739b04a510f78f7eeb972b082.pdf
Google Scholar15. Svenskarna och internet . 98 procent har tillgång till internet hemma, https://svenskarnaochinternet.se/rapporter/svenskarna-och-internet-2018/allmant-om-internetutvecklingen/98-procent-har-tillgang-till-internet-hemma/ (accessed 4 October 2021).
Google Scholar16. Cousineau, TM, Domar, AD. Psychological impact of infertility. Best Pract Res Clin Obstet Gynaecol 2007; 21: 293–308.
Google Scholar | Crossref | Medline | ISI17. Miller, C . Blogging infertility. New Atlant 2008; 2008: 79–90.
Google Scholar18. Kahlor, L, Mackert, M. Perceptions of infertility information and support sources among female patients who access the Internet. Fertil Steril 2009; 91(1): 83–90.
Google Scholar | Crossref | Medline19. Matsuda, S, Aoki, K, Tomizawa, S, et al. Analysis of patient narratives in disease blogs on the Internet: an exploratory study of social pharmacovigilance. JMIR Publ Health Surveill 2017; 3: e10.
Google Scholar | Crossref | Medline20. Barker, KK . Electronic support groups, patient-consumers, and medicalization: the case of contested illness. J Health Soc Behav 2008; 49(1): 20–36.
Google Scholar | SAGE Journals | ISI21. Sormunen, T, Karlgren, K, Fossum, B, et al. Focus on infertility—women’s experiences of using social media: a qualitative study. Open J Soc Sci 2021; 9: 382–395.
Google Scholar22. Allen, C, Vassilev, I, Kennedy, A, et al. Long-term condition self-management support in online communities: a meta-synthesis of qualitative papers. J Med Intern Res 2016; 18: e61.
Google Scholar | Crossref | Medline23. Sormunen, T, Aanesen, A, Fossum, B, et al. Infertility-related communication and coping strategies among women affected by primary or secondary infertility. J Clin Nurs 2018; 27: e335–e344.
Google Scholar | Crossref | Medline24. Shoebotham, A, Coulson, NS. Therapeutic affordances of online support group use in women with endometriosis. J Med Intern Res 2016; 18(5): e109.
Google Scholar | Crossref | Medline25. Li, N, Orrange, S, Kravitz, RL, et al. Reasons for predictors of patients’ online health information seeking following a medical appointment. Fam Pract 2014; 31(5): 550–556.
Google Scholar | Crossref | Medline26. Street, RL, Haidet, P. How well do doctors know their patients? Factors affecting physician understanding of patients’ health beliefs. J Gen Intern Med 2011; 26(1): 21–27.
Google Scholar | Crossref | Medline27. Clark, J . The narrative in patient-centred care. Brit J Gen Pract 2008; 58(557): 896.
Google Scholar | Crossref | Medline28. Malik, SH, Coulson, NS. Coping with infertility online: an examination of self-help mechanisms in an online infertility support group. Patient Educ Couns 2010; 81(2): 315–318.
Google Scholar | Crossref | Medline | ISI29. Senaste version av 2009:32 Socialstyrelsens föreskrifter och allmänna råd om användning av vävnader och celler i hälso- och sjukvården och vid klinisk forskning m.m ., https://www.socialstyrelsen.se/regler-och-riktlinjer/foreskrifter-och-allmanna-rad/konsoliderade-foreskrifter/200932-om-anvandning-av-vavnader-och-celler-i-halso—och-sjukvarden-och-vid-klinisk-forskning/ (accessed 26 September 2019).
Google Scholar30. Gavagai Explorer . The best text analytics. Ever. In any language, https://www.gavagai.io/ (accessed 9 October 2019).
Google Scholar31. Gavagai Explorer , https://explorer.gavagai.se/ (accessed 20 February 2018).
Google Scholar32. Karlgren, J, Sahlgren, M. From words to understanding. In: Kanerva, P, Sjödin, G, Kristoferson, J, et al. (eds) Computing with large random patterns. Stanford, CA: CSLI Publications, pp. 251–311.
Google Scholar33. Sahlgren, M, Karlgren, J. Terminology mining in social media. In: Proceedings of the 18th ACM conference on information and knowledge management, Hong Kong, China, , pp. 405–414. New York: ACM.
Google Scholar34. Sahlgren, M, Karlgren, J. Buzz monitoring in word space. In: Ortiz-Arroyo, D, Larsen, HL, Zeng, DD, et al. (eds) Intelligence and security informatics. Berlin: Springer, pp. 73–84.
Google Scholar35. Polit, DF, Beck, CT. Nursing research: generating and assessing evidence for nursing practice. Philadelphia, PA: Wolters Kluwer, 2016.
Google Scholar36. Espinoza, F, Hamfors, O, Karlgren, J, et al. Analysis of open answers to survey questions through interactive clustering and theme extraction. In: Proceedings of the 2018 conference on human information interaction & retrieval, New Brunswick, NJ, , pp. 317–320. New York: ACM.
Google Scholar37. Parks, M, Karlgren, J, Stymne, S. Plausibility testing for lexical resources. In: Jones, GJF, Lawless, S, Gonzalo, J, et al. (eds) Experimental IR meets multilinguality, multimodality, and interaction. Cham: Springer, pp. 132–137.
Google Scholar38. Holm, P, Karlgren, K. Cognitive science on trial, 1996, https://www.researchgate.net/publication/243787367_Cognitive_Science_on_Trial
Google Scholar39. Paavola, S, Engeström, R, Hakkarainen, K. The trialogical approach as a new form of mediation. In: Moen, A, Mørch, AI, Paavola, S (eds) Collaborative knowledge creation: technology enhanced learning, vol. 7. Rotterdam: SensePublishers, pp. 1–14.
Google Scholar40. Karlgren, K, Paavola, S, Ligorio, MB. Introduction: what are knowledge work practices in education? How can we study and promote them? Res Pap Educ 2020; 35: 1–7.
Google Scholar | Crossref41. The World Medical Association (WMA) . WMA declaration of Helsinki: ethical principles for medical research involving human subjects, https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/ (accessed 6 October 2021).
Google Scholar42. International Council of Nurses . The ICN code of ethics for nurses, https://www.icn.ch/sites/default/files/inline-files/2012_ICN_Codeofethicsfornurses_%20eng.pdf
Google Scholar43. Nowson, S, Oberlander, J. The identity of bloggers: openness and gender in personal weblogs, 2006, https://www.researchgate.net/publication/221251200_The_Identity_of_Bloggers_Openness_and_Gender_in_Personal_Weblogs
Google Scholar44. Smailhodzic, E, Hooijsma, W, Boonstra, A, et al. Social media use in healthcare: a systematic review of effects on patients and on their relationship with healthcare professionals. BMC Health Serv Res 2016; 16: 442.
Google Scholar | Crossref | Medline45. Redshaw, M, Hockley, C, Davidson, LL. A qualitative study of the experience of treatment for infertility among women who successfully became pregnant. Hum Reprod 2007; 22(1): 295–304.
Google Scholar | Crossref | Medline46. Heilferty, CM . Toward a theory of online communication in illness: concept analysis of illness blogs. J Adv Nurs 2009; 65(7): 1539–1547.
Google Scholar | Crossref | Medline47. Rains, SA . The implications of stigma and anonymity for self-disclosure in health blogs. Health Commun 2014; 29(1): 23–31.
Google Scholar | Crossref | Medline48. Matell, MS, Meck, WH. Cortico-striatal circuits and interval timing: coincidence detection of oscillatory processes. Brain Res Cogn Brain Res 2004; 21(2): 139–170.
Google Scholar | Crossref | Medline49. Wittmann, M, Paulus, MP. Decision making, impulsivity and time perception. Trends Cogn Sci 2008; 12(1): 7–12.
Google Scholar | Crossref | Medline50. Jacoby, R, Keinan, G. Between stress and hope: from a disease-centered to a health-centered perspective. Santa Barbara, CA: Greenwood Publishing Group, 2003.
Google Scholar51. RESOLVE: The National Infertility Association . The female body, https://resolve.org/infertility-101/the-female-body/ (accessed 8 March 2019).
Google Scholar52. Toombs, SK . The meaning of illness: a phenomenological account of the different perspectives of physician and patient. Dordrecht: Springer, 1992.
Google Scholar | Crossref53. Gameiro, S, Boivin, J, Peronace, L, et al. Why do patients discontinue fertility treatment? A systematic review of reasons and predictors of discontinuation in fertility treatment. Hum Reprod Update 2012; 18(6): 652–669.
Google Scholar | Crossref | Medline | ISI54. Bronstein, J, Knoll, M. Blogging motivations of women suffering from infertility, http://www.informationr.net/ir/20-2/paper669.html#.W3wKNc4zaUl (2015, accessed 21 August 2018).
Google Scholar55. Jones, M, Alony, I. Blogs—the new source of data analysis. J Issue Inform Sci Inform Technol 2008; 5: 433–446.
Google Scholar | Crossref56. Elliott, H . The use of diaries in sociological research on health experience, http://www.socresonline.org.uk/2/2/7 (1997, accessed 25 January 2018).
Google Scholar | SAGE Journals57. Hookway, N . Entering the blogosphere’: some strategies for using blogs in social research. Qual Res 2008; 8: 91–113.
Google Scholar | SAGE Journals | ISI58. Thomas, CM, Allison, R, Latour, JM. Using blogs to explore the lived-experience of life after stroke: “A journey of discovery I never wanted to take.” J Adv Nurs 2018; 74(3): 579–590.
Google Scholar | Crossref | Medline59. Prescott, J, Gray, NJ, Smith, FJ, et al. Blogging as a viable research methodology for young people with arthritis: a qualitative study. J Med Intern Res 2015; 17: e61.
Google Scholar | Crossref | Medline

Comments (0)

No login
gif