Pedersen RN, Calzolari E, Husby S, Garne E (2012) Oesophageal atresia: prevalence, prenatal diagnosis and associated anomalies in 23 European regions. Arch Dis Child 97(3):227–232. https://doi.org/10.1136/archdischild-2011-300597
Sfeir R, Bonnard A, Khen-Dunlop N, Auber F, Gelas T, Michaud L, Podevin G, Breton A, Fouquet V, Piolat C, Lemelle JL, Petit T, Lavrand F, Becmeur F, Polimerol ML, Michel JL, Elbaz F, Habonimana E, Allal H, Lopez E, Lardy H, Morineau M, Pelatan C, Merrot T, Delagausie P, de Vries P, Levard G, Buisson P, Sapin E, Jaby O, Borderon C, Weil D, Gueiss S, Aubert D, Echaieb A, Fourcade L, Breaud J, Laplace C, Pouzac M, Duhamel A, Gottrand F (2013) Esophageal atresia: data from a national cohort. J Pediatr Surg 48(8):1664–1669. https://doi.org/10.1016/j.jpedsurg.2013.03.075
Dingemann C, Eaton S, Aksnes G, Bagolan P, Cross KM, De Coppi P, Fruithof J, Gamba P, Goldschmidt I, Gottrand F, Pirr S, Rasmussen L, Sfeir R, Slater G, Suominen J, Svensson JF, Thorup JM, Tytgat S, van der Zee DC, Wessel L, Widenmann-Grolig A, Wijnen R, Zetterquist W, Ure BM (2021) ERNICA consensus conference on the management of patients with long-gap Esophageal Atresia: perioperative, surgical, and long-term management. Eur J Pediatr Surg 31(3):214–225. https://doi.org/10.1055/s-0040-1713932
Zimmer J, Eaton S, Murchison LE, De Coppi P, Ure BM, Dingemann C (2019) State of play: eight decades of surgery for Esophageal atresia. Eur J Pediatr Surg 29(1):39–48. https://doi.org/10.1055/s-0038-1668150
Friedmacher F, Puri P (2012) Delayed primary anastomosis for management of long-gap esophageal atresia: a meta-analysis of complications and long-term outcome. Pediatr Surg Int 28(9):899–906. https://doi.org/10.1007/s00383-012-3142-2
Sri Paran T, Decaluwe D, Corbally M, Puri P (2007) Long-term results of delayed primary anastomosis for pure oesophageal atresia: a 27-year follow up. Pediatr Surg Int 23(7):647–651. https://doi.org/10.1007/s00383-007-1925-7
Dellenmark-Blom M, Ax S, Lilja HE, Reilly C, Svensson JF, Kassa AM, Jönsson L, Abrahamsson K, Gatzinsky V, Omling E, Tollne A, Stenström P, Öst E (2022) Prevalence of mental health problems, associated factors, and health-related quality of life in children with long-gap esophageal atresia in Sweden. J Pediatr Surg. https://doi.org/10.1016/j.jpedsurg.2022.12.004
Pham A, Ecochard-Dugelay E, Bonnard A, Le Roux E, Gelas T, Rousseau V, Thomassin N, Cabon-Boudard I, Nicolas A, Guinot A, Rebeuh J, Le Mandat A, Djeddi DD, Fouquet V, Boucharny A, Irtan S, Lemale J, Comte A, Bridoux-Henno L, Dupont-Lucas C, Dimitrov G, Turquet A, Borderon C, Pelatan C, Chaillou Legault E, Jung C, Willot S, Montalva L, Mitanchez D, Gottrand F, Bellaiche M (2022) Feeding disorders in children with oesophageal atresia: a cross-sectional study. Arch Dis Child 107(1):52–58. https://doi.org/10.1136/archdischild-2020-320609
Ardenghi C, Vestri E, Costanzo S, Lanfranchi G, Vertemati M, Destro F, Pierucci UM, Calcaterra V, Pelizzo G (2022) Congenital Esophageal atresia long-term follow-up-the pediatric surgeon’s duty to focus on quality of life. Children. https://doi.org/10.3390/children9030331
Article PubMed PubMed Central Google Scholar
Svoboda E, Fruithof J, Widenmann-Grolig A, Slater G, Armand F, Warner B, Eaton S, De Coppi P, Hannon E (2018) A patient led, international study of long term outcomes of esophageal atresia: EAT 1. J Pediatr Surg 53(4):610–615. https://doi.org/10.1016/j.jpedsurg.2017.05.033
Dellenmark-Blom M, Abrahamsson K, Dingemann J, Witt S, Dingemann C, Jönsson L, Gatzinsky V, Bullinger M, Ure BM, Chaplin JE, Quitmann JH (2022) Factors of family impact in a Swedish-German cohort of children born with Esophageal atresia. Orphanet J Rare Dis 17(1):207. https://doi.org/10.1186/s13023-022-02361-2
Article PubMed PubMed Central Google Scholar
Bevilacqua F, Ragni B, Conforti A, Gentile S, Zaccara A, Dotta A, Bagolan P, Aite L (2020) Fixed the gap, solved the problem? Eating skills in Esophageal atresia patients at 3 years. Dis Esophagus. https://doi.org/10.1093/dote/doz102
Stewart A, Smith CH, Govender R, Eaton S, De Coppi P, Wray J (2022) Parents’ experiences of feeding children born with oesophageal atresia/tracheo-oesophageal fistula. J Pediatr Surg 57(12):792–799. https://doi.org/10.1016/j.jpedsurg.2022.08.013
Article PubMed PubMed Central Google Scholar
Conforti A, Valfré L, Falbo M, Bagolan P, Cerchiari A (2015) Feeding and swallowing disorders in Esophageal atresia patients: a review of a critical issue. Eur J Pediatr Surg 25(4):318–325. https://doi.org/10.1055/s-0035-1559819
Celtik U, Eyigor S, Divarci E, Sezgin B, Dokumcu Z, Ozcan C, Ozturk K, Erdener A (2022) Fiberoptic endoscopic evaluation of swallowing (FEES) study: the first report in children to evaluate the oropharyngeal dysphagia after Esophageal atresia repair. Pediatr Surg Int 38(9):1227–1233. https://doi.org/10.1007/s00383-022-05169-0
Tucker A, Huang EY, Peredo J, Weems MF (2022) Pilot study of sham feeding in postoperative neonates. Am J Perinatol 39(7):726–731. https://doi.org/10.1055/s-0040-1718881
Soyer T, Arslan SS, Boybeyi Ö, Demir N, Tanyel FC (2023) The role of oral feeding time and sham feeding on oropharyngeal swallowing functions in children with Esophageal atresia. Dysphagia 38(1):247–252. https://doi.org/10.1007/s00455-022-10461-1
Golonka NR, Hayashi AH (2008) Early “sham” feeding of neonates promotes oral feeding after delayed primary repair of major congenital esophageal anomalies. Am J Surg 195(5):659–662. https://doi.org/10.1016/j.amjsurg.2008.02.001
Tollne A, Nilsson T, Svensson JF, Almström M, Öst E (2024) Parents’ experiences of sham feeding their child with Esophageal atresia at home while awaiting reconstructive surgery. A qualitative interview study. Pediatr Surg Int 40(1):61. https://doi.org/10.1007/s00383-024-05660-w
Article PubMed PubMed Central Google Scholar
Gottrand M, Michaud L, Sfeir R, Gottrand F (2016) Motility, digestive and nutritional problems in Esophageal atresia. Paediatr Respir Rev 19:28–33. https://doi.org/10.1016/j.prrv.2015.11.005
Mahoney L, Rosen R (2016) Feeding difficulties in children with Esophageal atresia. Paediatr Respir Rev 19:21–27. https://doi.org/10.1016/j.prrv.2015.06.002
Koth AM, Sakarovitch C, Sidell DR, Schultz LM, Freccero A, Rizzuto S, Hanley FL, Asija R (2018) Postoperative feeding problems in patients with tetralogy of Fallot, pulmonary atresia, and major aortopulmonary collaterals undergoing unifocalisation surgery. Cardiol Young 28(11):1329–1332. https://doi.org/10.1017/s1047951118001270
Baxter KJ, Baxter LM, Landry AM, Wulkan ML, Bhatia AM (2018) Structural airway abnormalities contribute to dysphagia in children with Esophageal atresia and tracheoesophageal fistula. J Pediatr Surg 53(9):1655–1659. https://doi.org/10.1016/j.jpedsurg.2017.12.025
Kovesi T (2013) Long-term respiratory complications of congenital Esophageal atresia with or without tracheoesophageal fistula: an update. Dis Esophagus 26(4):413–416. https://doi.org/10.1111/dote.12061
Article CAS PubMed Google Scholar
Tregoning JS, Schwarze J (2010) Respiratory viral infections in infants: causes, clinical symptoms, virology, and immunology. Clin Microbiol Rev 23(1):74–98. https://doi.org/10.1128/cmr.00032-09
Article CAS PubMed PubMed Central Google Scholar
Dellenmark-Blom M, Örnö Ax S, Öst E, Svensson JF, Kassa AM, Jönsson L, Abrahamsson K, Gatzinsky V, Stenström P, Tollne A, Omling E, Engstrand LH (2022) Postoperative morbidity and health-related quality of life in children with delayed reconstruction of Esophageal atresia: a nationwide Swedish study. Orphanet J Rare Dis 17(1):239. https://doi.org/10.1186/s13023-022-02381-y
Article PubMed PubMed Central Google Scholar
Stevens B, McKeever P, Law MP, Booth M, Greenberg M, Daub S, Gafni A, Gammon J, Yamada J, Epstein I (2006) Children receiving chemotherapy at home: perceptions of children and parents. J Pediatr Oncol Nurs 23(5):276–285. https://doi.org/10.1177/1043454206291349
Hansson H, Kjaergaard H, Johansen C, Hallström I, Christensen J, Madsen M, Schmiegelow K (2013) Hospital-based home care for children with cancer: feasibility and psychosocial impact on children and their families. Pediatr Blood Cancer 60(5):865–872. https://doi.org/10.1002/pbc.24474
Comments (0)