Schubart JR, Wojnar M, Dillard JP, et al. ICU family communication and health care professionals: a qualitative analysis of perspectives. Intensive Crit Care Nurs 2015; 31: 315–21. https://doi.org/10.1016/j.iccn.2015.02.003

Article  PubMed  Google Scholar 

Seaman JB, Arnold RM, Scheunemann LP, White DB. An integrated framework for effective and efficient communication with families in the adult intensive care unit. Ann Am Thorac Soc 2017; 14: 1015–20. https://doi.org/10.1513/annalsats.201612-965oi

Article  PubMed  PubMed Central  Google Scholar 

Huff NG, Nadig N, Ford DW, Cox CE. Therapeutic alliance between the caregivers of critical illness survivors and intensive care unit clinicians. Ann Am Thorac Soc 2015; 12: 1646–53. https://doi.org/10.1513/annalsats.201507-408oc

Article  PubMed  PubMed Central  Google Scholar 

Kalocsai C, Amaral A, Piquette D, et al. “It’s better to have three brains working instead of one”: a qualitative study of building therapeutic alliance with family members of critically ill patients. BMC Health Serv Res 2018; 18: 533. https://doi.org/10.1186/s12913-018-3341-1

Article  PubMed  PubMed Central  Google Scholar 

Suleman S, O JM, McIlduff C, et al. Understanding equitable and affirming communication moments and relationship milestones during the intensive care unit journey: findings from stage 1 of a design thinking project. Can J Anesth 2023; 70: 995–1007. https://doi.org/10.1007/s12630-023-02456-9

Article  PubMed  Google Scholar 

O’Connor M, Watts KJ, Kilburn WD, et al. A qualitative exploration of seriously ill patients’ experiences of goals of care discussions in Australian hospital settings. J Gen Intern Med 2020; 35: 3572–80. https://doi.org/10.1007/s11606-020-06233-y

Article  PubMed  PubMed Central  Google Scholar 

Miciak M, Mayan M, Brown C, Joyce AS, Gross DP. The necessary conditions of engagement for the therapeutic relationship in physiotherapy: an interpretive description study. Arch Physiother 2018; 8: 3. https://doi.org/10.1186/s40945-018-0044-1

Article  PubMed  PubMed Central  Google Scholar 

Karnatovskaia LV, Johnson MM, Dockter TJ, Gajic O. Perspectives of physicians and nurses on identifying and treating psychological distress of the critically ill. J Crit Care 2017; 37: 106–11. https://doi.org/10.1016/j.jcrc.2016.09.008

Article  PubMed  Google Scholar 

Jones CD, Vu MB, O’Donnell CM, et al. A failure to communicate: a qualitative exploration of care coordination between hospitalists and primary care providers around patient hospitalizations. J Gen Intern Med 2015; 30: 417–24. https://doi.org/10.1007/s11606-014-3056-x

Article  PubMed  Google Scholar 

Institute for Patient- and Family-Centered Care®. Patient-and family-centered care. Available from URL: https://www.ipfcc.org/about/pfcc.html (accessed May 2025).

Davidson JE, Aslakson RA, Long AC, et al. Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit Care Med 2017; 45: 103–28. https://doi.org/10.1097/ccm.0000000000002169

Article  PubMed  Google Scholar 

Barry MJ, Levitan SE. Shared decision making—the pinnacle of patient-centered care. N Engl J Med 2012; 366: 780–1. https://doi.org/10.1056/nejmp1109283

Article  CAS  PubMed  Google Scholar 

Stewart M, Brown JB, Donner A, et al. The impact of patient-centered care on outcomes. J Fam Pract 2000; 49: 796–804.

CAS  PubMed  Google Scholar 

Goldfarb MJ, Bibas L, Bartlett V, Jones H, Khan N. Outcomes of patient- and family-centered care interventions in the ICU: a systematic review and meta-analysis. Crit Care Med 2017; 45: 1751–61. https://doi.org/10.1097/ccm.0000000000002624

Article  PubMed  Google Scholar 

Canadian Foundation for Healthcare Improvement, Canadian Patient Safety Institute. Evidence brief: caregivers as essential care partners; 2020. Available from URL: https://www.healthcareexcellence.ca/media/rz0ihqa1/evidence-brief-en-final-ua.pdf (accessed May 2025).

Hriberšek M, Eibensteiner F, Kapral L, et al. “Loved ones are not ‘visitors’ in a patient’s life”—the importance of including loved ones in the patient’s hospital stay: an international Twitter study of #HospitalsTalkToLovedOnes in times of COVID-19. Front Public Health 2023; https://doi.org/10.3389/fpubh.2023.1100280

Article  PubMed  PubMed Central  Google Scholar 

McGill University Health Centre. To loved ones and friends of MUHC patients; 2023. Available from URL: https://muhc.ca/news-and-patient-stories/news/loved-ones-and-friends-muhc-patients (accessed May 2025).

Krolikowski KA, Bi M, Baggott CM, Khorzad R, Holl JL, Kruser JM. Design thinking to improve healthcare delivery in the intensive care unit: promise, pitfalls, and lessons learned. J Crit Care 2022; 69: 153999. https://doi.org/10.1016/j.jcrc.2022.153999

Article  PubMed  PubMed Central  Google Scholar 

Liedka J, Ogilvie T. Designing for Growth: A Design Thinking Toolkit for Managers. New York: Columbia University Press; 2011.

Google Scholar 

Ly S, Runacres F, Poon P. Journey mapping as a novel approach to healthcare: a qualitative mixed methods study in palliative care. BMC Health Serv Res 2021; 21: 915. https://doi.org/10.1186/s12913-021-06934-y

Article  PubMed  PubMed Central  Google Scholar 

Kaushik V, Walsh CA. Pragmatism as a research paradigm and its implications for social work research. Soc Sci 2019; 8: 255. https://doi.org/10.3390/socsci8090255

Article  Google Scholar 

Kelly LM, Cordeiro M. Three principles of pragmatism for research on organizational processes. Method Innov 2020; 13: https://doi.org/10.1177/2059799120937242

Article  Google Scholar 

Morgan DL. Paradigms lost and pragmatism regained: methodological implications of combining qualitative and quantitative methods. J Mix Methods Res 2007; 1: 48–76. https://doi.org/10.1177/2345678906292462

Article  Google Scholar 

Allemang B, Sitter K, Dimitropoulos G. Pragmatism as a paradigm for patient‐oriented research. Health Expect 2022; 25: 38–47. https://doi.org/10.1111/hex.13384

Article  PubMed  Google Scholar 

Kivunja C, Kuyini AB. Understanding and applying research paradigms in educational contexts. Int J High Educ 2017; 6: 26–41. https://doi.org/10.5430/ijhe.v6n5p26

Article  Google Scholar 

Lautrette A, Darmon M, Megarbane B, et al. A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med 2007; 356: 469–78. https://doi.org/10.1056/nejmoa063446

Article  CAS  PubMed  Google Scholar 

Pasricha V, Gorman D, Laothamatas K, Bhardwaj A, Ganta N, Mikkelsen ME. Use of the serious illness conversation guide to improve communication with surrogates of critically ill patients. A pilot study. ATS Sch 2020; 1: 119–33. https://doi.org/10.34197/ats-scholar.2019-0006oc

Article  PubMed  PubMed Central  Google Scholar 

Happ MB, Garrett KL, Tate JA, et al. Effect of a multi-level intervention on nurse-patient communication in the intensive care unit: results of the SPEACS trial. Heart Lung 2014; 43: 89–98. https://doi.org/10.1016/j.hrtlng.2013.11.010

Article  PubMed  PubMed Central  Google Scholar 

Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfeld GD. The family conference as a focus to improve communication about end-of-life care in the intensive care unit: opportunities for improvement. Crit Care Med 2001; 29: N26–33. https://doi.org/10.1097/00003246-200102001-00006

Article  CAS  PubMed  Google Scholar 

Li Y, Fiest K, A Burns KE, et al. Addressing health care inequities in Canadian critical care through inclusive science: a pilot tool for standardized data collection. Can J Anesth 2023; 70: 963–7. https://doi.org/10.1007/s12630-023-02450-1

Article  PubMed  Google Scholar 

Suleman S, Labine N, McIlduff C, et al. Design thinking in critical care: engaging and co-creating human centred solutions. Can J Anesth 2024; 71: 60–2. https://doi.org/10.1007/s12630-024-02765-7

Article  Google Scholar